FAT Disorder Specialist, University of California, San Diego UNTIL JUNE 17, 2013
I am a board certified Endocrinologist by training and have always been interested in fat - why do daughters have fat just where their mothers do, and why do men develop large abdomens and skinny arms and legs as they age. While training at the University of Washington in Seattle, Washington, USA, I was introduced to patients with familial partial lipodystrophy and Madelung's disease (multiple symmetric lipomatosis; MSL). I was fortunate to work with one patient with MSL in Los Angeles and have come to know more as I continue working in San Diego. While conversing with the owner of the "About Madelung's Disease" website, she told me to look into Dercum's Disease. Finding out about lipedema was next. Since that time, I have seen many people with Dercum's disease, familial multiple lipomatosis (FML), Madelung's disease and lipedema (and lipo-lymphedema) from all over the world. While much research remains unpublished, I want to share my understanding of these disorders and provide suggestions for treatment so that you and your healthcare provider can help you live a better life.
At the University of Arizona, I will be seeing patients in two locations, the Main campus and the South campus. I will likely see patients with fat disorders on the main campus (University Medical Center).
Right now no one knows me as I am not officially on the books so if you call, you will wonder about me being there. :)
Potential clinic numbers include:
South Campus Abrams location: (520) 874-2778
University Medical Center 6th floor clinic: (520) 694-4000
You will need a medical record number prior to getting an appointment which you can get by calling (520) 694-8888. The administrators suggest you call this number now and wait until August 1, 2013 or maybe even September 1, 2013 before calling for an appointment. I will be updating this site with numbers and dates as I figure it out.
Concerning the lymphatic system, I will be working with Dr. Marlys Witte:
I wish you health and pain-free days.
Karen L. Herbst, PhD, MD
Below you see macrophages (roundish dark dots which are the nuclei of the macrophagers) or collagen (that thick pinkish colored area in the picture to the right) surrounding blood vessels from people with Dercum's disease.
Dr. Karen L. Herbst
Dr. Herbst was voted as one of San Diego’s top doctors in San Diego Magazine 2009
She was invited by CVAC Systems, Inc. to be on the Doctor's Show and was the research Physician on Mystery Diagnosis in June 2010 highlighting a young man with Dercum's Disease (The Man with 1000 Lumps).