5th Annual Barbara Croker (Lyons) Golf Tournament For Dercum’s Disease Research

8/25/2012

Barbara’s story
In 1996, Barbara Croker (Lyons) was diagnosed with this dreadful disease and
has undergone 39 major surgeries in the last 16 years. After a recent increase
in the diagnosis of Dercum’s Disease, there may be light at the end of the
tunnel for Barbara and other Dercum’s Disease patients. We have found hope in
researcher Dr. Karen Herbst of San Diego, CA. She has begun to research the
causes and possible cure for Dercum’s Disease. All proceeds from the tournament
will be donated to Dr. Herbst who is focusing on finding the gene or genes that
contribute to the development of Dercum's disease.

Please join us for a friendly round of golf to help research Dercum’s Disease!

Come meet Dr. Herbst

We once again are featuring two courses to play!

Where: Midville Country Club and West Warwick Country Club***

West Warwick, RI 02893

You will be assigned to play 9 holes on one of the courses

When: Saturday, October 06, 2012, Shotgun at 1:00pm, Registration @
11:30am

Fee: $75.00 per person or $300.00 per foursome (includes greens fees, dinner,
and prizes).

**Golf carts are not included but will be available for rental only if reserved**
***Use of WWCC is based on number of golfers***

Please contact Peter Lyons at (401) 345-3134 for more information.

Make checks payable to: RI Dercum’s Research Fund.

Obtain a form from Jim Greene and return it to:

Snail Mail: Jim Greene, 108 Maple Ave Rear, Barrington, RI 02806

Email: PJL1889@verizon.net

Can’t or don’t want to play? You can sponsor a hole for $50!

28 Comments

Li Poma

10/23/2012 11:12:09 pm

John: Hi, I don not know if you have any theories regarding lipomas in the body?

Andreas Moritz: Yes, lipomas are basically fat deposits that the skin is trying to get rid of when the liver is not able to do that, and so most of the lipomas they would disappear once the liver bile ducts are completely cleaned out and the body can retrieve or take back or dissolve those exit substances. Basically lipomas are formed when there are certain kinds of toxins that are kept in neutral by fatty substances and when the liver is not able to remove the fat compound in the body and they are recycling, they are sort of in recirculation, for example if you eat a chicken and you would have a blood test, right after that, you would take a fair amount of blood out of your body and you would put in a little test tube, what you will find within a couple of minutes is that one third of the blood sample will have fat floating on top of it. That means one third of the whole blood sample will be fat. So a lot of the fat that people eat they think that is all going to be just fine I am going to digest it. No it is ending up in your blood stream within half an hour or forty five minutes. And that is the issue that the liver does not cope with very well because it would have to remove that from the blood stream, but it is very, very unsuccessful when there is so much fat floating about. And when the liver bile ducts are clogged up anyway, then that uptake is diminished and then the body will have to dump fat into the connective tissues where they will make their way eventually through into those skin areas and then it is just a matter of time for those things to pop out and come out through the skin. So and there are certain tiny red blood vessels that in the same process become clogged up and then it shows up as red things that are some people have then all over the body.

John: so the best rid to get rid of this then would be to flush the liver and gall bladder ?

Andreas Moritz: that is correct, the liver is primarily responsible for keeping the blood clean and healthy and balanced and the second most important thing is not to eat those kinds of food that are directly involved in clogging up the bile ducts and also turning basically fatty substances diverting them into the skin.

Patrick Timpone: have you ever done a liver flush John?

Karen Herbst link

10/25/2012 01:31:24 am

I am not sure where this conversation originated, who these people are or why they posted on my blog. I do not recommend flushes of the body unless we understand the mechanism underlying the flush and understand the function of all the ingredients used in the flush. In addition, if the bile ducts of the liver were backed up, there would be an increas in alkaline phosphatase in the blood and perhaps elevations in liver enzymes.

I also do not value theories that have no evidence to back them up. Please rewrite this comment and back it up with data.

Karen Herbst

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7/14/2013 06:23:31 pm

I don't know what your game is or what type of potion you are trying to lure people into buying but this is not an appropriate venue for that. Unless you are intimately familiar with Dercum's Disease and are doing documented/verifiable research regarding Dercum's Disease in particular please don't comment on that which you are ignorant of. If you have done research that would be helpful please share that information with verifiable and testable data instead of a faux conversation reminiscent of an infomercial script.

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12/2/2012 09:39:20 am

Dear Dr. Herbst,

Thank you for continuing your scientific quest and relentless support of the patients. Since our comments always have scientific underpinnings, it might be worthwhile to enable moderation of blog. It will eliminate off-topic conversations (like above) to be indexed in your database.
Best of the wishes......

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5th Annual Barbara Croker (Lyons) Golf Tournament For Dercum’s Disease Research

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