being a support person in your lippy ladies surgery

3/22/2014

3/22/2014
I just returned from Germany where I was a support person, or a "second" we call it, during the lymph sparing water jet assisted liposuction by Dr. Josef Stutz in Bad Steben, Germany for three amazing lippy ladies (you know who you are).

I learned a few tricks during each of the three surgeries to make your lady comfortable so I wanted to share how to be a good second.

Please feel free to download the pdf here:

32 Comments

Melissa Ross

3/22/2014 03:13:40 pm

This is Brilliant!

Lilith Nix

3/22/2014 07:41:39 pm

Excellent concise suggestions for being a "second" in the operating room. After already having the surgery myself, I'd be willing to be a "second" for someone else if the need ever arose.

Laura murphy

3/22/2014 08:26:00 pm

Thank you very much for the helpful comments. My husband did not have your guidance when he accompanied me to my surgeries with Dr. Stutz. I believe getting arnica throughout the surgery is very important to prevent bruising. And how terrific to have a supportive person with you who understands the process and what is expected of them

Katherine Wescott

4/1/2014 07:09:42 pm

Does anyone know of a physician in Las Vegas,NV that uses this technique?

Cheryl Conner

4/4/2014 09:46:52 am

Is there a physician in the South that does this procedure?

Tracey

4/9/2014 05:33:32 pm

Hi
My daughter is 16. We have just discovered she has Lipedema and elevated insulin levels. I think she has had Lipodema for a couple of years. The doctor who diagnosed it said she has it mildly?? and also because of my daughters healthy life style and all the exercise she does have it badly. I would so like to get rid of it if possible before it becomes a massive problem. Of course it has already impacted hugely on her life as a teenager as has the insulin levels. The doc says she should have a course of the massage and bandages. This would take about a month. My daughter is not keen as she is at school etc and doesn't want to wear bandages. What would be the implications if she doesn't do it. Surely we should get the fluid and proteins out of her body. Will it get worse if we don't remove the fluid? Also how old do people have to be to have the liposuction. If this is a cure it would be amazing for my daughter to have that. I am so new at this and would appreciate any advice. I really have to get this right. Thank you

3/21/2016 06:45:42 pm

Yes it will most likely get worse. I believe anyone over 15 years old is able to get liposuction. Most insuranced will not cover it. She won't wear bandages for long. She will most likely leak for 24-48 hours after surgery. The insisions are very small. Good luck to your daughter

Leslie Sandoval

4/9/2014 10:30:42 pm

Hi, Dr. Herbst - I had liposuction in Dec '06 w/Dr.Abrams for my Dercums. It was a great relief for about a year, then came back with a vengeance. How does this surgery differ? I would assume a better outcome? Thanks so much for your help, if you could, please... Leslie

Gina

4/11/2014 10:34:55 am

Hi there. I am hoping someone can assist me. I am looking for a god Surgeon in Northern California for Liposuction for stage 3 Lipodema.

I am sitting here feeling so sad.....I have had this all my life and I work and I am so mentally active...and I hurt all the time. If it was not for the Love of Christ in my life.....I would be in deep depression.

Please. If someone could just help me figure this out.
My legs are getting worse. It makes me feel like a bad wife and less of a person sometimes...although my husband loves me so much and NEVER complains about it, I want to feel better- its the pain. Its just getting worse and every single day I can barely move.

God Bless You.
Gina Council.

Leisa

6/2/2014 01:33:47 am

Gina, I just saw your post. Please message me privately. Leisas@live.com or on Facebook. I'd like to talk to you about support & encouragement.
Blessings, Leisa

kathy wood

7/13/2014 02:35:26 am

I also have been diagnosed as stage 3 lipedema. My legs are so large and im having lots of pain. i feel all of what you said. if there is anyone that can help us please share what you find out.I live in Texas. i have heard that the doctors from Europe are teaching some Drs. in New York City how to do the liposuction.I dont know about the cost or if insurance would cover this. I wish i knew who to talk to about this.

Leisaq

9/22/2014 01:08:58 pm

Kathy W,
Are you on Facebook? We have a group specifically for Ladies in Texas. Feel free to look us up at Lipedema Sisters Texas
Blessings, Leisa

Leisa Stieneker

9/22/2014 01:09:13 pm

Kathy W,
Are you on Facebook? We have a group specifically for Ladies in Texas. Feel free to look us up at Lipedema Sisters Texas
Blessings, Leisa

Leisa Stieneker

9/22/2014 01:09:38 pm

Kathy W,
Are you on Facebook? We have a group specifically for Ladies in Texas. Feel free to look us up at Lipedema Sisters Texas
Blessings, Leisa

Leisa Stieneker

9/22/2014 01:10:15 pm

Kathy W,
Are you on Facebook? We have a group specifically for Ladies in Texas. Feel free to look us up at Lipedema Sisters Texas
Blessings, Leisa

3/21/2016 06:49:27 pm

Dr Amron is in Beverly Hills and is great. Google his name- he works/owns Roxbury institute and deals with numerous lipedema patients. He plans to start a course to education other surgeons. Most people have to travel for this surgery... There are very few experienced surgeons in the US right now that will go near the ankle area.

Shelley Glapion link

6/22/2014 03:45:31 pm

Hi. I just learned of Dercum's Disease. I haven't been diagnosed, however I've been dealing with the lipoma and pain for a few months. I live in a smaller town which doesn't help when trying to get proper care for a not so common illness or conditions. I'm finally able to meet with a rheumatologist this coming Friday (28 June). Everything I've read about Dercum's matches my problems. Is there anyway to maybe find some ways to discuss this with my doctors?

I'm also very open to integrative medicine. I've been taking Arnica in spray and tablet forms. If there are any suggestions as to what strength and/or other natural remedies/homeopathic treatments, I'm willing to try that as well. I would like to be as informed as possible so that I can be more active in my care.

Also if there are any clinics, support groups, specialty practices and whatever else near Kentucky that would be greatly appreciated. I live in Western Kentucky, but I will travel if that's what it takes to get help.

Thank you all for your help. This has been extremely isolating journey.

Hayley

8/16/2014 09:52:11 pm

Do you have the contact details for Dr Josef Stutz as I would be interested in having liposuction for my lipedema. Many thanks

Lorraine

9/22/2014 09:14:49 am

I have stage 3-4 lipedema and have felt so alone in this. Met with my doctor today and says I also have dercum's diasease. I was looking to see if anyone here in the US does the wal surgery but I was told not currently. I don't have the kind of money to go to Germany - as I don't think my insurance would cover it. I would love to be part of a trial also part of a support group if anyone can help. I have not been home in 17 yrs because of the way I look. I don't go out in public except to work because I get made fun of, on top of being big I am a technically a little person - how funny is that. I do travel outside the US as I figure I'll never see those people again - so I even go swimming - in a man't bathing suit bottom since they don't make them right for women. I am picking up a pump Friday. I found walmart - has these leggings by maiden form like spanx but a lot cheaper I have been wearing for compression help. My doctor suggested trying a gluten free diet so I am going to give that a try. Any info suggestions would be really appreciated

3/18/2015 09:12:47 am

Hi there,
I am 38 & have been in Stage 1 Lipedema since age 12. After a pregnancy 3 years ago, it appears parts of my upper thighs are now in Stage 2 & the pain is worse than ever all over both legs. I am underweight for my height as it is (this is how I have managed to keep it in check all these years), but feel in desperate need to do something to stop the progression as it seems to be getting worse by the day.
I am so deeply sad about having lipedema - it consumes my life & I spend hours each day (& have for years & years) researching & trying to find a solution that will free me from having this affliction. I want to try a ketogenic diet as I feel it may help metabolise the dysfunctional adipose tissue, but fear I may lose visceral fat in preference to the lipedemic tissue I have which would obviously be very dangerous.
Is there any research that you know of, anecdotal or otherwise on lipedema & nutritional ketosis?
Many many thanks for your excellent work & interest in this area, Em

Janie Ryness

6/25/2015 03:47:09 am

It is so hard to read all these comments knowing that so little can be done. The pain let's talk about the pain. I have a new therapist and she said lipoedema is not painful. I am not certain she knows there is anything but lymphedema. It is frustrating to know more than the specialist. I wish it were better for us. I too cannot do the chores I need too, play with my grandchildren like I want to or be me! So I would love to hear from anyone. It is 113 today so I am going to sign off Hot_ Stuck in tights!

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5/9/2016 06:14:31 am

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5/29/2016 11:16:33 pm

Hello. I would like to know any information on people with DD using a Ketogenic diet. I started one last week but results are no way similar to others on it in my household. Thank you for your support.

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6/18/2016 02:20:32 am

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1/31/2017 04:49:02 pm

Any suggestions regarding the WAL lupo? Anyone use the lupedema doctor from NY or Atlanta? Arizona seems closed for new patients. I wantched my beautiful mother suffer her whole life in stage 4 and here I am following the same path. Please help. Thank you in advance..... such a difficult decision and feeling quite alone.

Dee

1/31/2017 05:05:52 pm

I too would love info on the WAL besides what I have been able to research online. I live in the Northeast and I cannot find anyone who specializes or has even heard of DD. Its so frustrating that I went into a deep depression and my doctor put me on Cymbalta because it is known for pain as well. It has worked for psin discomfort but legs still swollen and not painful to walk anymore only pain to the touch. Still looking for a doctor to treat me. Willing too travel to NY, Boston but so far nothing.

Mar

1/31/2017 05:26:25 pm

Dee I hope someone responds. This is such a difficult journey and scary too.

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being a support person in your lippy ladies surgery

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