Lipedema Patient
Raises Awareness Posted on August 29, 2013 by Lymphatic Research Foundation Catherine Seo with Lymphatic Research Foundation Executive Director Bill Repicci Lymphatic Research Foundation Executive Director Bill Repicci met with Catherine Seo, a professor and documentary film-maker, last week to be interviewed on the progress being made in lymphatic research and in building awareness for lymphatic diseases. Catherine was diagnosed with lipedema, a chronic, hereditary, and genetic disorder of the adipose tissue generally affecting the legs and, in some cases, the upper arms. As lipedema progresses, patients become increasingly heavy in the lower body. The additional, expanding fat cells interfere with the pathways of lymphatic vessels, and patients can develop secondary lymphedema, a condition known as lipo-lymphedema. While lipedema predominantly affects women, there are a few cases in men. Believed to be caused or exacerbated by hormonal disturbance, lipedema usually is triggered at puberty, but can begin or worsen during or after pregnancy, at peri-menopause, or following gynecological surgery or any surgery with anesthesia. Estimates of the incidence of lipedema vary widely, and may be as high as 17 million or 11% of the post-puberty female population. Catherine was originally misdiagnosed and underwent a series of five surgeries, which resulted in secondary lymphedema. Catherine’s experiences prompted her to research these disorders. She discovered that both lipedema and lymphedema are often difficult to diagnose and, despite their prevalence, receive little attention, research funding, and focus. Catherine has looked at the cultural issues as well, especially in the United States, which stigmatize and blame women for weight issues. In order to help others who may suffer from these illnesses, Catherine has developed a website, www.lipoedema-simplified.org, has scheduled a series of speaking engagements, and is producing a documentary, You Mean It’s Not My Fault: Lipedema – A Fat Disorder. “I deeply hope this information can save even one person from the circuitous, painful, and difficult journey that I’ve navigated,” Catherine said. “There is hope.”
47 Comments
9/4/2013 11:40:15 pm
I have very severe Lipo-Lymphedema as diagnosed by Dr. Karen Herbst along with secondary Dercum's Disease.
Reply
erica philip
10/14/2017 08:26:39 pm
DIVORCE AND MARITAL BREAKTHROUGH
Reply
Belinda Hicks
3/10/2023 03:22:18 pm
Real Spell Caster 2022/2023 Get Your EX Lover Back No Matter Why They Left You, Contact DR PETER WhatsApp +1 (646) 494-4360 drpeterspellcaster21@gmail.com
Reply
Belinda Hicks
3/10/2023 03:23:22 pm
Real Spell Caster 2022/2023 Get Your EX Lover Back No Matter Why They Left You, Contact DR PETER WhatsApp +1 (646) 494-4360 drpeterspellcaster21@gmail.com
Reply
Hanne Isabelle
11/14/2013 07:21:43 am
Dear Karen! I couldnt find any contact information, so Im going to post it here, hoping you read it!
Reply
Oona
3/9/2016 11:10:45 am
Hello,
Reply
Phil jefferies
1/23/2014 12:33:13 pm
Karen,
Reply
Debbie
10/18/2016 10:09:46 pm
Hi Phil,
Reply
mary jo phipps
7/17/2015 12:08:05 am
Thank you for ll you have done. I am just starting to try to battle Lipedema and Decums Disease. I probably wouldn't have had a chance if you and Dr Herbst had not preceded with your efforts. I am very grateful.
Reply
5/15/2018 11:50:34 pm
Are you looking for Top MBA college in Greater Noida? So Mangalmay Group of institution is one of the Best MBA college in Greater Noida. With continuous record of above 93% placement.
Reply
5/1/2016 03:05:54 am
Good post but I was wondering if you could write a little more on this subject? I’d be very thankful if you could elaborate a little bit further. Appreciate it
Reply
5/2/2016 12:15:09 am
It would seem that you spend a considerable measure of exertion and time on your web journal. I have bookmarked it and I am anticipating perusing new articles. Keep doing awesome
Reply
5/2/2016 03:26:07 am
Excellent .. Amazing .. I’ll bookmark your blog and take the feeds also…I’m happy to find so many useful info here in the post. we need work out more techniques in this regard. thanks for sharing
Reply
5/3/2016 12:30:29 am
Making it very seek out online websites utilizing useful information on specified niche and provides the criminals to professor some of our belief and also report.
Reply
5/7/2016 12:18:44 am
This content is written very well. Your use of formatting when making your points makes your observations very clear and easy to understand.
Reply
5/8/2016 03:34:02 am
This article is such a nice and interesting one, I'm very satisfied with the provided contents. I hope more excellent articles would be posted in your website.
Reply
2/2/2017 03:21:46 am
Thanks a lot for sharing your informative blog. All the information are extremely helpful. Thanks a lot
Reply
4/3/2017 12:17:52 am
This is really great work. Thank you for sharing such a useful information here in the blog.
Reply
4/3/2017 02:30:34 am
It is a well-maintained site where people can learn about various topics. I am looking forward to read more blogs from here. Students finding it tough to write an assignment can try our online assignment help and can get their coursework written by assignment experts.
Reply
4/3/2017 04:04:01 am
Much obliged to you a considerable measure for setting aside the ideal opportunity for you to share such a decent data.
Reply
4/3/2017 05:06:13 am
I am certain this post has offered me some assistance with saving numerous hours of perusing other related presents just on find what I was searching for. Much obliged!
Reply
4/3/2017 05:29:26 am
Good way of telling, good post to take facts regarding my presentation subject matter, which i am going to deliver in my college.
Reply
4/3/2017 05:58:47 am
Hi buddy, your blog' s design is simple and clean and i like it. Your blog posts about Online Dissertation Help are superb. Please keep them coming. Greets!!
Reply
4/14/2017 02:45:48 am
If you're a creative thinker and like to explore alternative solutions to problems, no doubt you should try writing service.
Reply
4/14/2017 03:33:01 am
Great info! I recently came across your blog and have been reading along. I thought I would leave my first comment. I don’t know what to say except that I have
Reply
4/14/2017 03:46:20 am
I appreciate this work amazing post for us I like it.
Reply
4/14/2017 04:31:57 am
My friend recommended this blog and he was totally right keep up the fantastic work!
Reply
7/14/2017 03:18:10 am
Nice article. You raise some interesting points. Thank you.
Reply
10/9/2017 12:59:43 pm
I enjoy what number of problems in our modern day education method are offered here!
Reply
11/1/2017 07:38:06 am
Thanks so much for this information. I have to let you know I concur on several of the points you make here and others may require some further review, but I can see your viewpoint
Reply
11/1/2017 08:16:10 am
Extraordinarily pleasing post. This is my first time I visit here. I discovered such endless stuff in your blog particularly its exchange. Truly its phenomenal article. Keep it up.
Reply
11/1/2017 08:25:16 am
Regular visits listed here are the easiest method to appreciate your energy, which is why why I am going to the website everyday, searching for new, interesting info.
Reply
11/11/2017 01:52:42 am
only professional writers can make this kind of material, cheers
Reply
1/7/2018 10:30:41 pm
Economicskey Provides quality Economics homework help for students.
Reply
10/8/2021 05:03:28 am
<b><a href="https://www.onegeneric.com/product/buy-azelaic-20-gel-online-aziderm-gel">aziderm gel</a></b> is a non-antibiotic topical acne treatment that is available as a 20% cream and a 15% gel or foam, and it is often used as an adjuvant acne treatment. It has comedolytic, antimicrobial, and anti-inflammatory properties.
Reply
8/17/2022 11:57:31 pm
Hi there! Nice stuff, do keep me posted when you post again something like this
Reply
2/7/2023 11:46:44 am
I am glad you take pride in what you write. This makes you stand way out from many other writers that push poorly written content.
Reply
Belinda Hicks
3/10/2023 03:22:27 pm
Real Spell Caster 2022/2023 Get Your EX Lover Back No Matter Why They Left You, Contact DR PETER WhatsApp +1 (646) 494-4360 drpeterspellcaster21@gmail.com
Reply
Belinda Hicks
3/10/2023 03:23:42 pm
Real Spell Caster 2022/2023 Get Your EX Lover Back No Matter Why They Left You, Contact DR PETER WhatsApp +1 (646) 494-4360 drpeterspellcaster21@gmail.com
Reply
3/21/2023 06:31:45 am
We must not give up. There is really hope!
Reply
Leave a Reply. |
AuthorKaren Herbst, a physician, educator and fat and lymphatic disease advocate Archives
July 2017
Categories |