Meet Ola Winqvist at the Karolinska Institute

4/13/2012

Ola Winqvist is an Immunologist at the Karolinska Institute and he is very interested in Dercum's disease (DD). He would like to understand the immune dysfunction underlying DD. He has already evaluated people with Type 2 DD and is looking for people with Type 3 DD. People with Type 3 DD tend to be less obese, and have larger lipomas that are painful especially on the arms, thighs, low back and abdomen. Women also have the lipomas in their breasts and men can have them on their chests. Dr. Winqvist has scheduled a meeting that is open to anyone with DD (Types 1-3).

Where? Karolinska Institute, Gustav V building.
When: Friday May 11th from 13.00-16.00.

There will be a reporter there as well as at least one other medical doctor interested in DD. Please try and attend. This event will not only advance our medical knowledge of DD but also promote awareness through a newspaper article.

20 Comments

Kevin

5/28/2012 12:49:08 am

Hello Dr Herbst,

The type 3 descriptions fit my symptoms which have become more a part of my daily life over the past 2 years. Only this week did I begin searching 'painful lipomas' and find your resources - thanks for that! Glad to answer questions for any doctor that is seriously studying this.

Best

Len

6/4/2012 02:36:28 am

I have symptoms and my son also has some of the symptoms. He is skinny, I have gotten larger. Doctors just tell me I am fat and to loose weight. I wish I could find a doctor in my area who understands any of this!

david

7/4/2012 08:10:10 am

Thanks for your posts, sent him an email and was so happy since Im from Norway and this is close. I have under 18% bodyfat - and hundres of lipomas. Some of them painful.

Im only 27, and since this has been so progressive the last two years, Im almost afraid I wont live another decade.
It only started with 4-5 lumps on one arm - now its everywhere and growing.
I have stopped drinking (so much) and will try to followe the RAD diet and the hydrone pexide + beta glucan.

Hopefully, my body will fix itself.

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5/28/2013 10:32:09 pm

The work of Immunologist like Ola Winqvist is thankfully remembered during this occasiom. Since he handle Dercum's disease usually, all patients get a wonderful treatment. Thanks for explaining the symptoms of this disease also and look forward for some healthy tips from next posting also.

richard blevins

5/31/2013 10:26:56 pm

karen, my wife had spoke with you once before, i am 37 years old 6 ft 280 lbs. i have over 5000 lipomas from pea size to apple. i have had seven removed only to have ten more grow back. my first one was when i was 27 and weighed 210. 4 months ago i weighed 240. i have a disability hearing coming up and was wondering if you could or anyone else could help me. my hands feet and stomach are extremely swollen. even though i was diagnosed 10 years ago i cant find a doctor to help me. i cant even barely get out of bed anymore. i just dont know where else to turn. every square inch of my body from my thighs to my neck are covered, mostly in my stomach arms back ribcage area.please if there is anything you can recomend or help me with my disability hearing, i am so poor, i cant work, its a struggle to even spend time with my two young children. my phone is 239 771 2926 and my email is blev07@hotmail.com. i live in fort myers florida. my doctor gives me tramadol for pain. with naproxen. it does not help. these things are on fire as they multiply...... please anyone out there if you could help please do.

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10/28/2013 04:21:00 pm

Women also have the lipomas in their breasts and men can have them on their chests.

Monica Berzén

4/19/2015 10:22:35 pm

I saw this now 20/ 04/ 2015 and I was so hopefull untill I saw the date was 2012..

whats happening 2015 lot of peopel with DD wonder...

Karen Herbst

9/16/2015 06:35:06 am

Ola Winqvist and Team Dercum is starting a new study this fall. I will be meeting with them in November. Slow but steady progress.

Susie Martin

9/16/2015 03:48:18 am

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5/7/2016 04:37:08 am

I wish I could find a doctor in my area who understands any of this!

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This event will not only advance our medical knowledge of DD but also promote awareness through a newspaper article.

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Janice Thiele

11/25/2018 11:47:48 pm

Hi Karen,

My name is Jan Thiele and I have dercums disease. Tomorrow I have an MRI but I was hoping you could please provide me with the MRI settings required as I have had no hope or help from anyone in Australia.

I hope to hear from you soon
Kindest
Jan

Meet Ola Winqvist at the Karolinska Institute

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