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Ola Winqvist is an Immunologist at the Karolinska Institute and he is very interested in Dercum's disease (DD). He would like to understand the immune dysfunction underlying DD. He has already evaluated people with Type 2 DD and is looking for people with Type 3 DD. People with Type 3 DD tend to be less obese, and have larger lipomas that are painful especially on the arms, thighs, low back and abdomen. Women also have the lipomas in their breasts and men can have them on their chests. Dr. Winqvist has scheduled a meeting that is open to anyone with DD (Types 1-3).
Where? Karolinska Institute, Gustav V building. When: Friday May 11th from 13.00-16.00. There will be a reporter there as well as at least one other medical doctor interested in DD. Please try and attend. This event will not only advance our medical knowledge of DD but also promote awareness through a newspaper article.
20 Comments
Kevin
5/28/2012 12:49:08 am
Hello Dr Herbst,
Len
6/4/2012 02:36:28 am
I have symptoms and my son also has some of the symptoms. He is skinny, I have gotten larger. Doctors just tell me I am fat and to loose weight. I wish I could find a doctor in my area who understands any of this!
david
7/4/2012 08:10:10 am
Thanks for your posts, sent him an email and was so happy since Im from Norway and this is close. I have under 18% bodyfat - and hundres of lipomas. Some of them painful. 5/28/2013 10:32:09 pm
The work of Immunologist like Ola Winqvist is thankfully remembered during this occasiom. Since he handle Dercum's disease usually, all patients get a wonderful treatment. Thanks for explaining the symptoms of this disease also and look forward for some healthy tips from next posting also.
richard blevins
5/31/2013 10:26:56 pm
karen, my wife had spoke with you once before, i am 37 years old 6 ft 280 lbs. i have over 5000 lipomas from pea size to apple. i have had seven removed only to have ten more grow back. my first one was when i was 27 and weighed 210. 4 months ago i weighed 240. i have a disability hearing coming up and was wondering if you could or anyone else could help me. my hands feet and stomach are extremely swollen. even though i was diagnosed 10 years ago i cant find a doctor to help me. i cant even barely get out of bed anymore. i just dont know where else to turn. every square inch of my body from my thighs to my neck are covered, mostly in my stomach arms back ribcage area.please if there is anything you can recomend or help me with my disability hearing, i am so poor, i cant work, its a struggle to even spend time with my two young children. my phone is 239 771 2926 and my email is blev07@hotmail.com. i live in fort myers florida. my doctor gives me tramadol for pain. with naproxen. it does not help. these things are on fire as they multiply...... please anyone out there if you could help please do.
Monica Berzén
4/19/2015 10:22:35 pm
I saw this now 20/ 04/ 2015 and I was so hopefull untill I saw the date was 2012..
Karen Herbst
9/16/2015 06:35:06 am
Ola Winqvist and Team Dercum is starting a new study this fall. I will be meeting with them in November. Slow but steady progress.
Susie Martin
9/16/2015 03:48:18 am
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This event will not only advance our medical knowledge of DD but also promote awareness through a newspaper article. 6/18/2016 11:26:47 am
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Janice Thiele
11/25/2018 11:47:48 pm
Hi Karen, Leave a Reply. |
AuthorKaren Herbst, a physician, educator and fat and lymphatic disease advocate Archives
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