moving to arizona

5/4/2013

I have been at the University of California, San Diego and the VA San Diego Healthcare System since September 2005, almost eight years. I am grateful for all my friends and mentors that I worked with during that time and I will be sad to leave.

Over Christmas we visited family in Tucson and had a very nice time. At a Christmas party, I met a lot of University of Arizona faculty and felt "at home". "First Sign"

My father-in-law died soon after we left and I began to realize quite deeply how important it was for me and my family to be closer to family.

While preparing for a lipedema webinar, I reviewed a powerrpoint presentation by Dr. Marlys Witte from the University of Arizona and her last slide was of a building with the words "Lymphedema Center". Wow, a lymphedema center at the University of Arizona; wish I could have seen it while I was there. "Second sign"

I truly started thinking about looking at the University of Arizona but then thought of all I had to do in San Diego and tried to sqash my interest and negate the signs. On a drive in to work, while I was waiting in a long line of cars going in to the VA, I was actually squashing the signs when I looked up and there was a car in front of me with Arizona license plates. "Third sign"

At that point I felt the Universe speaking to me and I went directly into work and looked up the Endocrinology Division at the University of Arizona. I found the Endocrine Division Chief and called him. You can imagine the conversation. Hi, I'm Karen Herbst and I work with patients with fat disorders and they have lymph problems and you have a lymmphedema center and, well, do you have any openings? Well, amazingly they were hiring! I sent in my curriculum vitae and here we are.

I look forward to taking my research in fat disorders to a new level.

I will be continuing my research on fat disorders.

EXPECT GREAT THINGS

Karen Herbst

108 Comments

Rosalind

5/4/2013 12:24:39 pm

Wow that is big news! Congratulations! My parents used to have a place in Tucson - so beautiful. Maybe you'll connect with Dr. Weil can't recall if he's affiliated with UA or ASU. In any case all the very best one of these days I'd like to trek out there for an appointment. Best wishes to you and your family!

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Dawn Johnson

5/4/2013 12:36:58 pm

wow! that is awesome! i sure hope with you being in Arizona i will eventually get to meet with you. not that it is much closer to me then california is. but it might just be easier :) good luck and best wishes

Robin Steeley

5/4/2013 12:42:17 pm

follow your heart karen!! thats so funny, i was talking to someone today about moving to sedona. I will see you there!!!!
i hope you will be able to see former patients, you know we will follow you wherever you go great lady,and im due for my appointment! so excited for you = many blessings~!

Nancy Wyrick

5/4/2013 12:42:42 pm

Congratulations, Dr. H! I am so happy for you! Spending time with family is so important. And I know that you will do great things at the University of Arizona, just as you did in San Diego! Looking forward to great things to come. Oh, and you are a little closer to me now, :-)

Shoshana Wyrick Jarman

5/19/2013 02:36:39 pm

Hi Nancy, I am a patient of Dr. Herbst too and my maiden name is Wyrick. I am originally from Kansas City. U would love to learn more if we have a family connection but I would also love to meet others with Lipoedema here in San Diego.

Denise Horton-Hamilton

5/4/2013 12:44:05 pm

Congratulations so happy for you and your family.... Good Luck at The University of Arizona.. I look forward to hearing about your work there... Thanks for all you do for Fat Disorders :)

Rebecca Haig

5/4/2013 12:54:15 pm

all the best for the big move...really sounds like it was meant to be!
wishing it was Australia not Arizona but hey,if I ever win lotto you will be the first person I get on a plane to come visit :)
all the best,I am sure great things are going to happen

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5/22/2016 03:12:18 am

After years of procrastination, here comes my official YouTube Channel. I will be uploading many timelapse videos, live chats, interviews and more.

Diane Ryder

5/4/2013 01:06:32 pm

Congratulations, I wish you happiness and success in your new home.

Lissa Elliott

5/4/2013 01:07:25 pm

Congratulations Dr. Karen as nothing is more important than family. I wish all the best and brightest blessings to you in your new endeavor.
On a selfish note, I am torn that you are leaving as you have been working with my Dr. and others on treatments plans for my severe Lipo-Lymphedema and now you will no longer be "in my backyard" and I dont even know if the insurance will cover me to have repeat appointments with you any longer outside of So. Cal. I pray you will still work with my Dr, on my case as I am desperate for something o work before it is too late for me.
You are a truly wonderful person, and I know we will see many great things come from you in the coming years.
All my best
Lisa

anita

5/24/2013 02:58:49 am

Lisa - I share your feelings about Dr. Herbst moving to Arizona. My son has severe lipedema and lymphedema and at one point weighed 421 lbs. Three things have helped him greatly: acupuncture, a diagnosis of celiac disease (requiring a gluten-free diet) and coconut oil. He's down to 350 with no other major changes. Perhaps one or all of these might be worth a try.

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6/10/2016 03:30:27 am

Well, amazingly they were hiring! I sent in my curriculum vitae and here we are.

Carole Reed link

5/4/2013 01:38:50 pm

Congratulations, Karen! I see great things in your future. U of A sounds "Heaven sent". I hope you and your family will be gloriously happy in your new home.

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6/19/2016 01:16:19 am

I sent in my curriculum vitae and here we are.

Laura Morris

5/4/2013 01:55:35 pm

Karen that is wonderful! I am so excited that you have found your direction! I wish you all the best and i am glad that you will be closer to your family. When the universe speaks, I believe it is so important to follow. God will never lead you astray. All my best and my prayers for a smooth transition. :)

Teresa Larch

5/28/2013 04:53:53 am

I am one of the fortunate ones as my husband did get a hold of
Dr. H as she was moving. I like many others am looking for a real diagnosis for Dercums. I live in FL so my husband had asked her if she might know of anyone close that could help. She gave me 3 names and one of the names was......Laura Morris! That's you! I have been trying to reach hope wellness and had just about given up..... and here I found your post? I would be so grateful if you could please give me a call? My # is 904-220-5492 or C 904-874-5492. I have tried the # to your office and for some reason it just rings about 10 times and makes a rumble noise? Its not a fax noise (LOL) I know the difference. If you would rather just text me a phone # to reach you can text to my cell? Anyways, Yahoo for you Dr. H I hope life will be wonderful to you in AZ!!!! I wish all the people that love, care, and rely on you could give you a big house warming party!!!! Hang in everyone! Teresa Larch

richard blevins

5/31/2013 10:30:38 pm

karen, my wife had spoke with you once before, i am 37 years old 6 ft 280 lbs. i have over 5000 lipomas from pea size to apple. i have had seven removed only to have ten more grow back. my first one was when i was 27 and weighed 210. 4 months ago i weighed 240. i have a disability hearing coming up and was wondering if you could or anyone else could help me. my hands feet and stomach are extremely swollen. even though i was diagnosed 10 years ago i cant find a doctor to help me. i cant even barely get out of bed anymore. i just dont know where else to turn. every square inch of my body from my thighs to my neck are covered, mostly in my stomach arms back ribcage area.please if there is anything you can recomend or help me with my disability hearing, i am so poor, i cant work, its a struggle to even spend time with my two young children. my phone is 239 771 2926 and my email is blev07@hotmail.com. i live in fort myers florida. my doctor gives me tramadol for pain. with naproxen. it does not help. these things are on fire as they multiply...... please anyone out there if you could help please do.

Gina Bentley

5/4/2013 02:08:20 pm

I am thankful that you had the intuition to even recognise the 'signs' when so many others would have missed them. And then, the courage to follow through. Brett and I wish you all the very best, with much love and joy that comes with having family near, and your great mind expanded and renewed even more with all the new, wonderful neat 'stuff' you research doctors do :)
Hugs!!

Catherine Seo

5/4/2013 02:16:47 pm

CONGRATULATIONS Karen! that's wonderful news! It will be fabulous for you and for so many. Easy and gentle move and transition!

Pamela Harrison

5/4/2013 02:17:21 pm

Congrats Karen! I'm so happy for you and your family!

SYLVIA BURLESON link

5/4/2013 02:30:06 pm

I am so happy for you. You will be closer to Ohio! I hope this turns out to be the best decision of your life. I am very excited for you! I am so relieved that you will be able to continue your work on fat disorders.

Jennifer Fuller

5/4/2013 02:36:04 pm

That sounds awesome! I am so excited for you and I am very happy that you will be closer to a lot of us with RADs! Good luck on your move. I am praying for little stress as I know that moving is a pain in the rump!

Stacy Pacheco

5/4/2013 02:44:44 pm

Dr. H, so glad to hear you are following your "signs"!! I hope to see you sometime soon!! Safe travel & best of luck!!!

Michelle Schnepper

5/4/2013 03:13:21 pm

Good for you! A brave decision. Looking forward to seeing your new office in Arizona! ;)

MelIissa Ross

5/4/2013 03:20:45 pm

I'm actually not surpirsed about your move.... Looking back at a conversation we all had when you were with our lippy group up in Santa Barbara....My lil inner voice told me that you were going to be heading up that way! Happy that you are following your "signs" and moving closer to family, but will miss having you here in San Diego! I don't want to lose you as my doctor, so....... I guess I'll be traveling up your way a couple times a year! I actually have a couple of different friends that live up in Tuscon ~ will make the journey twice as nice!! Happy trails to you!!

Mary Frydenberg

5/4/2013 04:14:55 pm

As a person who believes in signs.....congrats!

Carina Rascher

5/4/2013 05:02:31 pm

What an exciting time in life! Congratulations on your wonderful decision. The wink from above came at the right moment. May your hopes and dreams be fulfilled.

Cynthia

5/4/2013 06:03:55 pm

Dear, dear Karen, you have already done so much to help all of with these disorders and I am sure that this move will be a step in the right direction towards more help - and who knows - a cure:-) Hope the move goes well - just as far for me to come, but would love to see you yet again! Hugs to the family xxxxx

Suzann Cheney

5/4/2013 08:05:57 pm

Congratulations Dr. Herbst on the plans to move to AZ. I know you will be successfull no matter where you work, and the knowledge you possess on fat disorders will clearly be of great benefit to the University and other faculty there! We look forward to great things from you as you continue your research into these disorders! Good Luck!

Lori Diaz

5/5/2013 12:01:57 am

I am so very happy for you, and I know you will do well, no matter where you are. I am relieved that you will continue your studies, and still take care of the DD patients. I had actually thought of moving to Casa Grande, AZ, and had one good sign, this is a second, and the very very best of all. Congratulations, and may you find many true blessings in Arizona. Best of Luck !!

Mary Lane

5/5/2013 12:09:36 am

Wow Karen, it is important to follow those signs!!! I am sooo happy for you! I hope you can have everything the way you want it there. I just called the other day to make an appt with you, my guess you will be gone by then, the end of October?.....for your sake, I hope so....for my sake, maybe not so much...LOL I wish you, John and Sarah the best of luck in your new locale!!!!!

Sheila Villmer

5/5/2013 03:53:41 am

Dr Herbst, you have helped so many people-including me. I know that you will continue to help many at your new location. You have been put on this earth for such a time as this. You have been given great gifts to be a wonderful doctor. I only met with you for one appointment but you left a lasting impression on me. You were kind, compassionate and very smart. Do all that is in your heart to do!

alex tash

5/5/2013 05:18:41 am

How wonderful for you and your family to be so close now! Congrats!!! See you soon *h*

Celia Sparks

5/5/2013 04:12:35 pm

Congratulations Dr Herbst - I loved the way you looked for confirmation through signs. Onwards and upwards with research about fat disorders. As a Lipoedema person, and member of two support groups, one in England and one in Australia, I am so grateful for all that you do for us. One day enlightenment will come to South Africa too.

Linda Perez link

5/5/2013 08:23:23 pm

Dr. Herbst, congratulations on your move. I hope this will also give you more freedom to give other doctors meetings on how to help people with Dercums sense most doctors don't even know what it is. Now that your no longer are bound to the University of San Diego. I hope you can travel some to teach what you know so other doctors can help people who can't travel to you. I'm in Houston and have seen Dr. Fife at Herman Hospital. Since 2000 I've been trying to get a diagnoses to no avail. I can't travel now that my health has gotten so bad. Please share what you have learned from Dr. Dercum's papers. God Bless and Thank you. Please let me know if you ever come to Houston, or if there is a Doctor I can see. Thank you.

Jeanie Upshaw

10/9/2014 03:48:05 am

Ms. Perez,
I also live in the Houston area and found Dr. Fife's name listed as a doctor who treats Dercum's Disease. She is now in The Woodlands and I have tried to contact her with no success. Did she treat you for Dercum's? I am trying to find a doctor in the Houston area who knows about the disease and would like to know if you have had any success in finding someone in this area to treat you. If anyone who reads this knows of anyone in Texas who treats Dercum's, please let me know. I am extremely frustrated with not being able to get any answers or treatment and would welcome any advice.

Gale Sylvester- De Mello

5/6/2013 02:06:26 am

Hi Dr. Herbst,
WOW!!! Tony and I are so happy for you and your family (we just found out)!!! Maybe now you can relax a little more and enjoy more time with your family. John and Sara must be thrilled!!! Now I know why you haven't answered my emails and Dr. O'Mailia has not been able to reach you.
I just talked with Melissa this morning and she told me that she was at the Fund Raiser in RI, yesterday and Barb told her about your new position. We want to wish you all the BEST and we are always here for you!!! U of A is very lucky to have you on their staff, you will bring so much to the table with your knowledge, caring, devotion and dedication to your patients. . . It has been a privilege to be a patient of yours since 2006 and I hope I can still remain one!

Laura Baker

5/6/2013 10:35:35 am

Congratulations, Dr. Karen! How exciting for you, John and Sarah! Being near family and at the U of A is a double bonus! Not to mention living in Tuscon!

I look forward to reading your research results as time goes by. What a fascinating position for you to be in, being able to share info with and from Dr. Marlys Witte. I have wanted to visit her Lymphedema Treatment Center for some time now. Perhaps soon.

Please let me know if there is anything I can do for you in the future. I'll be happy to help in any way I can.

Best wishes for a smooth move!

Mindy Willert

5/7/2013 06:01:56 am

How exciting for your family! See you in AZ when you start taking patients.

Judy Betts

5/13/2013 10:41:39 am

Very excited for you. Unfortunatly for me, I have an appointment with you in San Diego on August 12th that I made in February (earliest I could get in). I've been diagnosed with Dercum's and really need to see you. What is the best way to make this happen without a huge wait? I have no problem at all coming to Tucson instead of San Diego (or coming to San Diego before you leave, if we can make that happen).

Maralin Kavanaugh

5/20/2013 01:25:48 am

I wish you all the best. I have DD and can find no help in the area of Jacksonville Florida. As a nurse now turned patient Iam thrilled someone is knowlegeable about this disorder/syndrme/desease. I would be happy to be included in research or clinical trials if I could do so from Florida. Good luck and Gods speed.

Teresa Larch link

5/28/2013 05:25:57 am

Hello,
My name is Teresa Larch, I also live in Jacksonville FL. I am basically in the same situation as you. I have been a patient here at the Mayo Clinic for about 8 years. My GP is fairly sure I have Dercums but doesn't know anything about it...nor does the Mayo. Have you been diagnosed formally, or is that the help you are requiring. I have found quite a few options for us here....Id be happy to share with you, if your interested?
It would be great to know someone close and to share stories, symptoms, info, etc. I really need a friend, especially a DD friend!
I actually have an appointment June 5 that (says) he has worked with Dercums and can give me a diagnosis (if indeed that's what it is). I'm sure that it is 100%.
Please get in touch if your interested in the resources I've come up with. You can call me at H 904-220-5492 or C 904-874- 5492. I am usually at home, not just from DD, We own 2 Pre Schools and am not needed much. Hoping to here from you Maralin. may be we can do lunch?
Truly,
Terry Larch
kidsbythehour@yahoo.com

Teresa Larch

5/28/2013 05:32:06 am

Hello,
My name is Teresa Larch, I also live in Jacksonville FL. I am basically in the same situation as you. I have been a patient here at the Mayo Clinic for about 8 years. My GP is fairly sure I have Dercums but doesn't know anything about it...nor does the Mayo. Have you been diagnosed formally, or is that the help you are requiring. I have found quite a few options for us here....Id be happy to share with you, if your interested?
It would be great to know someone close and to share stories, symptoms, info, etc. I really need a friend, especially a DD friend!
I actually have an appointment with a new DR June 5 that (says) he has worked with Dercums and can give me a diagnosis (if indeed that's what it is). I'm sure that it is 100%.
Please get in touch if your interested in the resources I've come up with. You can call me at H 904-220-5492 or C 904-874- 5492. I am usually at home, not just from DD, We own 2 Pre Schools, and have great Director's that do most of the work for me, I'm truly blessed!. Hoping to here from you Maralin, may be we can do lunch?
Hopeful in Jax,
Terry Larch
kidsbythehour@yahoo.com

Teresa Larch

5/28/2013 05:32:13 am

Hello,
My name is Teresa Larch, I also live in Jacksonville FL. I am basically in the same situation as you. I have been a patient here at the Mayo Clinic for about 8 years. My GP is fairly sure I have Dercums but doesn't know anything about it...nor does the Mayo. Have you been diagnosed formally, or is that the help you are requiring. I have found quite a few options for us here....Id be happy to share with you, if your interested?
It would be great to know someone close and to share stories, symptoms, info, etc. I really need a friend, especially a DD friend!
I actually have an appointment with a new DR June 5 that (says) he has worked with Dercums and can give me a diagnosis (if indeed that's what it is). I'm sure that it is 100%.
Please get in touch if your interested in the resources I've come up with. You can call me at H 904-220-5492 or C 904-874- 5492. I am usually at home, not just from DD, We own 2 Pre Schools, and have great Director's that do most of the work for me, I'm truly blessed!. Hoping to here from you Maralin, may be we can do lunch?
Hopeful in Jax,
Terry Larch
kidsbythehour@yahoo.com

Terri Alexander

6/11/2013 01:40:56 pm

I also am a nurse with DD symptoms. I live in Tallahassee, FL. If you hear of any research or clinical trials I would be glad to participate as well.

Lynne Jaquith Lowe

5/21/2013 02:55:19 am

When will you be in Arizona?
When can DD patients start seeing you?
Thrilled you'll be close by.

anita qureshi

5/24/2013 02:49:53 am

Dr H - I'm happy for you - we visited Tucson years ago and I really liked it; I totally understand why you are making this move. At the same time, for me and Matt it feels like a tremendous loss. Just knowing you were within driving distance and accessible by email was such a comfort. You have done so much for us in putting us in touch with so many resources. I don't think either one of us has the physical wherewithal to make a trip to Tucson but I hope we can keep in touch sometimes by email. We will never forget you.

Richard Blevins

5/31/2013 10:34:15 pm

richard blevins

5/31/2013 10:43:21 pm

by the way i was diagnosed with dercums disease by a dr in norristown pa 10 years ago who sent me in to a plastic surgeon who started cutting the larger ones out. but as ive stated under every scar are 10 more lipomas i had one in my chest at 27 years old. they said dont worry about it. by the next year i had couple hundred in my arms chest and stomach. by a year ago after the last surgery to take a golfball size one off my ribcage the scans and ultrasounds were showing just a guess he said of 5000 of them in my abdomen and flanks chest area. so now i have one dead center of my chest that is alreadygolf ball size with a couple smaller ones there and that is scary cuz its getting close to putting pressure near my heart i think and that i know is dangerous. so any help or info out there would be greatly appreciated. thanks

richard blevins

5/31/2013 10:44:40 pm

richard blevins

5/31/2013 10:45:02 pm

Laura Stalker

6/4/2013 04:54:07 pm

you will be greatly missed at the VA I hate to see you go but you have to do what is best for you!! I thank you so much for giving me a diagnosis that finally made sense cant wait to keep you up to date on my progress

Steve Pauley

6/18/2013 03:13:38 am

Dr. Herbst, according to our research you are the only person who is well versed in Dercums. My wife was hoping so much to be able to be seen by you this summer while school is out. She teaches 8th grade math/algebra. Some days she comes home so exhausted and she is in constant pain 24/7. Pain has become her life. She needs to see you as soon as possible, Is there any possible way you could see her prior to August? She doesn't have a lot of sick leave accrued. I know you are busy transitioning from San Diego but she needs the benefits of your knowledge of Dercums and fibro.

Karen Herbst link

6/18/2013 03:59:03 am

Karen Herbst says: I will be in transition from UCSD and the VA San Diego from June 29-August 1 and cannot see patients during that time as I am legally not covered and will not have a clinic.

Shweta Patrachari

6/20/2013 08:14:04 am

Hi Dr. Herbst,

Congrats on your new venture!

Regards,

Shweta

Sonya Guarisco

7/26/2013 10:06:30 pm

Hello Karen; my name is Sonya and my husband had this dercum disease. I was wondering is there a diet that might help lessen these fat tumors? He has had about 5 surgeries to have them removed and coming up in September he is having another surgery to have more removed. Could you please help me to help him? Thank you.

Karen Herbst link

7/29/2013 04:24:00 am

Hi Sonya. There is not a diet that has been scientifically proven to help with Dercum's disease lipomas. The RAD diet on this website and posted elsewhere seems to help some people. As part of the diet, one goal is to keep saturated non-plant based fat in the diet low. The inner fat layer thrives on saturated fat.

Please make sure your husband has compression after removal of the lipomas as either an ace wrap or compression suit. If not, the lipomas return.

Sonya

8/5/2013 09:57:19 am

Thank you so much. So are you saying that saturated non-plant based is that like vegetable oil? Where can I purchase a compression suit and how much do they run? Brian has so many it's crazy.

Karen Herbst link

8/5/2013 11:49:30 pm

For the RAD diet I suggest keeping oils to a minimum and if you use oil, a good virgin olive oil or flax oil is good. Fish oil is an excellent anti-inflammatory. Keep simple carbs low and eat complex carbs. Smoothies with lots of green (e.g. spinach) and some berries with a good non-whey protein such as pea and/or rice.

I am not sure if compression is right for Brian without seeing him. A manual lymph drainage therapist could help get him fit or a medical supply store.

Carin Paulsen

8/8/2013 05:40:28 pm

This is great news Dr. Karen. I hope your schedule will be a little less demanding than it was in San Diego. i hope to see you as a patient once that process begins. gosh i hope for so much for you, like better pay, better facilities, more time to research, more time for family. I am glad the angels held their signs up in the right times and places to get your attention. Yipppppeeeeeeee

Brandy Page

8/26/2013 02:37:08 am

I'm so sorry for your loss. Congratulations on the move! I'm trying to find out if my insurance is accepted so I can finally make an appointment with you. Arizona is much closer to me! I wish you the best of luck!

http://www.healthprocon.com/truth-about-cellulite/ link

10/28/2013 04:21:43 pm

On a drive in to work, while I was waiting in a long line of cars going in to the VA, I was actually squashing the signs

Reyna Stoken

11/5/2013 06:22:46 am

How do I find a doctor that knows anything about DD. I have developed 100's of painful lipomas over the last 4-5 months. I have been so sick too. The lipomas came later, I noticed them after some severe nausea, a severe episode of breathlessness, nerve pain, numbness & tingling, and fatigue. I pointed them out, as having just started getting this "rash under my skin", while at the Mayo clinic. I was told they were unrelated and to have them looked at when I got home. Mine feel like they are in lines, mostly on my thighs and upper arms, but also on my lower arms, lower legs, and ribs. I have always struggled with my weight and food addictions but I am not overly heavy right now (168lbs, 5'7"), although I seem to be unable to lose any weight at all now. I feel very alone, and kind of frightened about my future. I've been on a low carb diet for over a month. My thinking is that it forces your body to burn fat. I'm also focusing on low glycemic index and glycemic load foods. Thinking that the body uses insulin to store fat, so the less my body gets the less likely more lipomas will form. If i'm completely off on this, please tell me what to do. I am very motivated to get as healthy as possible. I felt like I was healthier than I had been in a decade or more, (155lbs, 5'7", and running 2mi+), when this disease or whatever it is attacked my body last April.
Please help,
Reyna

Maggie Hamley

3/1/2014 04:40:51 pm

Hi, Dr. Karen! I am thrilled to hear of your move from California to Arizona for all of the important family reasons. I have been looking for new material online re DD, especially from you (and I found it, thank you!). When I found your white papers with UofA headers I started wondering...then found this page and saw your notes regarding your move to be closer to family in AZ in 2013!. Wooo hoooo! Les and I moved from Alaska to SW Idaho in 2012. Now I just need to figure out how and when we might be able to get me in for a follow up visit. I can't tell you what a huge smile I have on my face right now. Thank you for following the signs. Maggie

Jackson link

5/19/2014 11:07:29 pm

This is a great blog posting and very useful. I really appreciate the research you put into it.

Tracey Shadbolt

6/4/2014 07:52:36 am

Hi Dr Herbst

I live in Australia and I think my 15 year old daughter may have Lipedema.

My daughter never ate that much and was always sporty and ran cross country for her district at age 12 and 13. When she was about 13/14 I realised that something was wrong. She was slowly starting to put on weight mainly on her thighs although she did not eat much and extremely active. Finally last year Dr David Carey an Endocrinologist (Health and Diabetes – Brisbane) sadly diagnosed Kirsty with; an increased range of insulin, Lipedema and partial adrenal congenital hyperplasia (and elevated progesterone). I still don’t fully understand what Dr Carey actually thinks is wrong with Kirsty. When pressed he said that she has a tiny, tiny percentage of Lipedema – something like 5%?? He said that she should stick to a 1,400 calorie (her resting metabolic rate) a day diet for the rest of her life, and that she was not able to burn any excess off with exercise. It is true that if Kirsty goes over 1,400 calories a day she puts on weight.

Kirsty is not huge by any means. She is 158 cm and her weight fluctuates but is approximately 62 kg. I can send photos and obviously the reports from doctors and blood test results.

In the hopes of fully understanding Kirsty’s condition we saw Dr Ian Bunce, the only doctor in Brisbane able to diagnose Lipedema. He runs a Lipedema/Lymphedema clinic mainly for women who have developed the condition post cancer treatments (http://iconcancercare.com.au/our-doctors/dr-ian-bunce/ ). Dr Bunce said that Kirsty has Lipedema (early stages) and some secondary Lymphedema. He said that little is known about the condition, especially in young people like Kirsty, but that he wanted to treat her condition aggressively and enter a 3 week lymphatic massage program and therefore minimize any development or further damage. Unfortunately my daughter is not keen on this treatment and does not want to accept she has Lipedema (if in fact she does). My husband is of a similar opinion.

As such I have now contacted you in the hopes finding out once and for all what Kirsty has and who to best deal with it. I have been onto your website. I have put Kirsty onto Selenium, bio flavonoids, Butchers broom, etc, etc. I so admire you and am in awe of your passion. I desperately would like your opinion please. My daughter is only 15 and at the moment she is not that over weight and there is not too much fluid retention. We have been so lucky to catch whatever she has at such a young age and so early in its stages and I am DESPARATE to keep her that way and as such need to know what I am dealing with and how to manage it.

I have tried for the past month to get a phone appointment with you in Arizona and was only told this morning that it is not possible.

I appreciate you taking the time to read this. I know you must be incredibly busy.

I look forward to hopefully hearing from you.

Best regards

Tracey Shadbolt
Email: ctshadbolt@bigpond.com

Kyle Wait

6/16/2014 06:48:02 am

Congratulations on your move. This reply is a bit selfish however! I have a nagging question that I need an honest answer too. Could Thoracic outlet syndrome be the cause of DD for some patients? Couldn't the restriction through the duct slow lymph flow and be a root cause? Has anyone with DD that presented TOS symptoms had TOS corrective surgery? If so what were the results. I went to see Dr Herbst a couple years back and she confirmed my diagnosis of DD. But I have had signs of TOS for years prior to lypomas.... If anyone knows a better place to pose this question I would appreciate the help.

Sorry to hi-jack the thread.
Respectfully
Kyle Wait
Palmer Alaska

Bob

2/10/2015 08:01:43 am

Dr. Herbst:

You need to teach some other doctors to diagnose adipose tissue disorders.

I just got your "next available appointment" which is 10 months and 4 days from now. Yikes.

Karen Herbst link

2/10/2015 11:42:10 pm

I am actively training fellows.

anita q

2/11/2015 02:05:44 am

hi Dr Herbst,

good news..Matt qureshi is coming home this Saturday after three months in rehab, following the removal of a 60 lb lobule by two UCSD surgeons, Dr Anna Kulidjian and Dr dabke. It was the largest she had ever removed and the only one done without blood transfusions
He made an excellent recovery with no complications. It was a first in so many ways that there was a brief segment about it on ABC 10 Tv as well as a
newspaper article. Yesterday he was dancing down the hall at the rehab facility, doing all his Elvis moves
Hard to believe that four months ago it was so large it was almost dragging on the ground and now it's gone.

Dr K is writing this up for a medical journal and is anxious to spread the word that she has the experience and expertise to help cases like Matt. I remember how hard you tried to find help for matt and I am eternally grateful. Now you have another option for your patients

I hope everything is going well for you and I would love to hear from you.

oscar mark

5/20/2015 09:02:48 pm

i had this for 3 years.it was all over my arms,chest,stomach,legs,feet for 3 years and i had 4 of them in my arms taken off .The surgeon that took them off told me they would grow back,they did come back,the pains i get was killing me so I went to my doctor but all i keep on hearing is story. i went on search on the internet where i came across someone testifying about an herbal doctor curing him of his disease then i chose to contact him cause dercums was frustrating but at first i did not believe i was just giving a try of him. to my greatest surprise the herbal medicine sent to me did not only reduce them but also take them out completely and for over a year now no symptoms of it coming back
kindly email him to get yours via: drfredherbalcuringcenter@yahoo.com ,he's an herbal doctor tell him i referred you to him.

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11/4/2015 12:16:50 pm

Am Joyce, Herpes wanted to destroy me, but with the help of Dr.Ekpiku i escaped the death that was on my way, i am here to testifies on how Dr Ekpiku help me to cure my sickness called Herpes which has been eating me up for 2 years and 4 months, i also saw online how he has cured so many people, Dr Ekpiku is a great herbalist that treats and cure all manner of diseases like Herpes, HIV, Cancer, Syphilis, Hepatitis B, all types of Cancer, Gonorrhea, and solves life's problems that you might have etc.. contact him today and he will help you solved your problem, contact him via ekpikuspelhomeofgrace@gmail.com or ekpikuspelhomeofgrace@hotmail.com call +2348073673757 OR whatsapp him. THESE ARE THE THINGS Dr. Ekpiku. HERPES. HIV/AIDS. CANCER.

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11/23/2015 03:25:57 am

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Hello. I would like to know any information on people with DD using a Ketogenic diet. I started one last week but results are no way similar to others on it in my household. Thank you for your support.

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4/7/2017 04:38:57 pm

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4/9/2019 04:47:48 pm

HELLO EVERYONE.. FEW MUNINETS TO REDY THIS INFOR ON HERPES CURE 2018..
2017 MY MOTHER WAS DIAGNOSED OF HERPES/ KNOWN AS GENITAL WARTS ,I SPENT A LOT OF MONEY ON HER MEDICATION TILL A POINT I EVEN LOST HOPE,BECAUSE MY MOTHER WAS GRADUALLY DYING AND LOST HER MEMORY TOO, I WAS SO DESPERATE TO GET MY MOTHER BACK TO NORMAL, ONE DAY MY UNCLE WHO LIVES IN LONDON UNITED KINGDOM TOLD ME ABOUT DR OLIHA ,WHO HELPED HIM GET RID OF HERPES /GENITAL WART WITH HERBAL MEDICINE AND HIS HERBAL SOAP ,I WAS SO SHOCKED WHEN HE TOLD ME ABOUT THIS ,ALTHOUGH I NEVER BELIEVE IN HERB BUT, I KEEP TO BELIEVE BECAUSE MY UNCLE CAN'T TELL ME LIES WHEN IT COMES TO HEALTH CONDITION I CONTACTED DR OLIHA VIA HIS EMAIL; OLIHA.MIRACLEMEDICINE@GMAIL.COM , YOU CAN TALK TO HIM VIA CALL OR WHATSAPP MESSENGER ON +2349038382931 , HE REPLIED AND ASK ME TO SEND MY HOME ADDRESS AND MY MOTHER'S DETAIL AND THEN I PURCHASED THE HERBAL MEDICINE,SENT ME THE HERBAL MEDICINE THROUGH COURIER SERVICE, WHEN I RECEIVED THIS HERBAL MEDICINE USED IT FOR 2 WEEKS, AND 4 DAYS OF USAGE THE WARTS FELL OFF, MY MOTHER I NOW TOTALLY CURED AND MY MOTHER IS LIVING FREE AND HAPPY AGAIN. YOU CAN TALK TO DR VIA HIS MOBILE NUMBER OR WHATS APP HIM ON +2349038382931.ALL THANKS TO DOCTOR DR OLIHA

vaire sathish

5/6/2019 02:58:21 pm

I am greatful to Dr. Iyoha, the powerful herbal healer that rescued me from HERPES virus. I was diagnosed of these virus in 2012 and because of this, I was very unhappy with my life and I went into research on how I can get cured and I saw a testimony of a woman Stancy on how she was cured from HERPES by Dr. Iyoha, I decided to give him a try and when I contact him, he assure me that he will help me and send me the cure and I believed in him because all I wanted was to be cured, so he prepared a herbal cure for me and send it to me through UPS and gave me instructions on how to use it and after 15 Days I should go to hospital for checkup and after the 15 days of using the herbal medicine, I went to the hospital for test and to my surprise the test stated that I am HERPES Negative and I am fully cured from the virus. This gladdens my heart and everybody in the hospital was surprised even the Medical Doctor, So viewers Dr. Iyoha is a God Gifted man and he can cure so many diseases. You can contact him through his email: driyohasolutiontemple@yahoo.com I will continue to share this great testimony on the internet and all over the world for the good job Dr. Iyoha has done for me. Email: driyohasolutiontemple@yahoo.com or call : +1 (407) 337-9869

DR IYOHA CAN ALSO CURE THE FALLOWING DISEASES.

1 Cancer of all kind
2 Hiv/aids
3 Low sperm count
4 Barrenness
5 Hpv
6 Herpes
7 Genital Wart
8 Rare disease
9 Hepatitis
10 Zika virus
11 ALS
12 IF YOU NEED YOUR EX LOVER BACK

victoria jannifer

5/7/2019 11:49:18 pm

Hello all online viewer ,,,, HERPES AND HIV to heal
Does anyone still doubt natural herbal medicine? I have seen the great importance of natural herbs and the wonderful work they have done in people's lives. I wonder why people are still spending their money on surgery, injections and medications that can not cure you completely. Natural herbs can cure all kinds of diseases, including herpes, diabetics, asthma, HIV, hepatitis, ALS, etc. I saw it with my own eyes. I was cured of HIV and my aunt and her husband were cured of the herpes virus and tested negative after using herbal medicine. I ' have also been healed from HIV and tested negative to HIV after using herbal medicine by Dr. HAZIM who uses natural herbs to heal different types of diseases. Even Dr. Sebi proves to the world that natural herbs can cure all diseases and has cured countless people using natural herbs. I know is hard to believe but am a living testimony. There is no harm in trying herbal medicine. Contact or write Dr.Hazim on: (usmandrhazim@gmail.com) (phone / whatsap no): +2349058026857,

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