|
The essentials of the RAD diet are as follows: Lower consumption of pasteurized dairy products, animal protein and fats, simple sugars and carbohydrates (low glycemic), salt and wheat or processed flour products, while enriching the diet with organic fruits, vegetables, whole grains and healthy proteins. Avoid foods that contain lots of chemicals such as artificial preservatives, flavors, fake sweeteners like aspartame, colors and stabilizers which includes most prepared, packaged and fast foods. A lot of packaged foods have advanced glycation end products or AGEs that can cause damage in the body and increase the risk for diabetes and alzheimers. Cooked foods also have AGEs so raw foodists also support lowering your AGE consumption.
1. Lower fat consumption as fats are absorbed directly into the lymphatics. 2. Eat low glycemic index foods to lower insulin levels - insulin makes fat grow. 3. Eat lots of fresh vegetables that have enzymes that are absorbed into the lymphatics and in essence "roto-rooter" out the stagnant protein. You can add enzymes with advice from your healthcare provider. 4. Lower your salt intake if you are able so you retain less water/fluid. 5. Each time we eat we generate inflammation as the lymph system surrounds the gut. Rest the gut by takig a day off and eating liquid type foods such as soups, stews (without meat or at least with pulled meats), smoothies, protein shakes, applesauce, juiced vegetables and fruits. ENJOY!
214 Comments
SELMA BROADHURST
6/9/2012 05:26:25 am
My stomach has suspiciously been pushed up through my esophagus. Is it possible that, since I have multiple lipomas (from shoulders to ankles) (two surgically removed from both sides of hips) 9/5/2013 02:13:37 pm
In genuineness prosperous content and very helpful in seq 12/26/2016 12:32:38 pm
A lot of packaged foods have advanced glycation end products or AGEs that can cause damage in the body and increase the risk for diabetes and alzheimers. Cooked foods also have AGEs so raw foodists also support lowering your AGE consumption. 8/25/2017 12:48:42 pm
can cause damage in the body and increase the risk for diabetes and alzheimers. Cooked foods also have AGEs so raw foodists also support lowering your AGE consumption. 10/24/2021 11:18:46 pm
As we develop vintage, our sexual performance additionally gets disturbed because the manufacturing of testosterone hormone and libido stage decreases. VigorNow Male Enhancement male enhancement tablet facilitates in the manufacturing of testosterone hormone and keeps the libido stage that allows to improve our sexual overall performance as we develop antique.VigorNow Capsule increases the blood circulate the corpora cavernosa, allowing more blood float to the penis which increases the dimensions of the penis. 9/5/2013 02:14:54 pm
Wonderful site and I wanted to post a note to let you know, ""Good job""! I’m glad I found this blog. Brilliant and wonderful job ! Your blog site has presented me most of the strategies which I like. Thanks for sharing this 9/11/2013 07:18:50 pm
Hi, I do think this is a great site. I stumbledupon it ;) I may revisit yet again since i have saved as a favorite it. 9/11/2013 07:22:36 pm
This post is so informative and makes a very nice image on the topic in my mind. 12/14/2015 01:14:19 am
You will find seven crucial things property professionals have to understand about how exactly to profit from the growth in luxury property sales. What works my shock you. 11/13/2021 08:10:10 am
Weight loss pills are a nuero-pharmacological type of drug that is used to treat obesity. They are designed to suppress appetite, reduce food intake, or modify metabolic processes. 9/17/2013 03:21:51 pm
uence. I got it my elucidation from over here. I very much urge his/her workings with the constructive enlightening information. Thanks a lot……… 9/17/2013 03:22:14 pm
Wonderful site and I wanted to post a note to let you know, ""Good job""! I’m glad I found this blog. Brilliant and wonderful job ! Your blog site has presented me most of the strategies which I like. Thanks for sharing this 9/17/2013 03:23:51 pm
You may write about the special offers on the blog. You could speak it's electrifying. Your blog studies might expand your payments 9/17/2013 03:24:16 pm
You might post on the pictures for the blog. You should support that it's captivating. Your blog test results/effects would swell your spenders. 9/27/2013 10:10:19 pm
This is a really quality post.I find this information through Google Search engine. I read your Article very carefully it is really very informatic Article,I bookmarked your site. 9/27/2013 10:12:34 pm
I wanted to thank you for this great read!! I definitely enjoyed every little bit of it. I have you bookmarked to check out new stuff on your post. 9/27/2013 10:13:05 pm
It was very useful for me. Keep sharing such ideas in the future as well. This was actually what I was looking for, and I am glad to came here! Thanks for sharing such a information with us. 10/6/2013 07:49:53 pm
bookmark your post how ever i can appear a back latter. 10/9/2013 10:01:32 pm
This is very interesting. thanks for that. we need more sites like this. 10/9/2013 10:02:37 pm
This is a great blog ! it was very informative. I look forward in reading more of your work. 10/9/2013 10:03:00 pm
I really appreciate for your brilliant Efforts on spending time to post this information in a simple and systematic manner. 10/21/2013 02:37:04 pm
I enjoy a couple of from the Information which has been written, and particularly the comments posted! I will definitely be visiting again!
Laurie Collins
1/19/2014 12:11:17 am
I too have a hiatal hernia. I'm curious to know how common this is in people with DD. Is it a result of the tumors pushing on the stomach, or of our inability to exercise as often as is recommended? Any help would be great! My diet is dwindling! I've already omitted gluten, dairy (except goat cheese), beef, pork, refined sugars. 3/6/2014 05:48:31 pm
thanks a lot for all the measures and efforts you took us here to make us more distinctive with our knowledge and thinking criteria. 3/6/2014 05:48:57 pm
One more time please! this is all i could say to request you for posting some more great contents like this again. 3/6/2014 05:50:03 pm
Its a great masterpiece written up here i wish to have a more brief reading of it now and in future. 3/6/2014 05:50:28 pm
So exhilarating comments shown up here, i am glad that i am a member of this blog world, feeling proud at this moment now. 3/6/2014 05:50:52 pm
After reading up this blog i have shown some great interests in these type of blogs and would say that it needs to be bookmarked now. 3/25/2014 08:56:03 pm
Great information shared with the users here, its noteworthy one to get a great information for future business purpose. 3/25/2014 08:56:28 pm
i liked this article published here on this superb platform, it needs to be followed wisely as mentioned for absolute results always 3/25/2014 08:57:13 pm
These are really a superb showcases here I am glad to have a review of it and feel to roll on its steps for my benefit always 3/25/2014 08:57:35 pm
Excellent topic to have a short review, i am certainly impressed while having a look on to it and everyone needs to follow it now on 12/23/2015 06:56:31 am
This article gives the light in which we can observe the reality. this is very nice one and gives in depth information. thanks for this nice article. 11/1/2016 01:51:54 am
This post is so informative and makes a very nice image on the topic in my mind.
Bonita
8/16/2018 02:55:51 pm
Sounds like a hiatal hernia.
Crystal Cordova
12/30/2019 05:43:57 pm
Hi Selma, I had a 5CM Lipoma removed that was pushing my stomach up into my esophagus and causing scarring in my esophagus. Doctors thought they were just repairing a normal hiatal hernia and didn't realize the lipoma was there until they went in for surgery. Just wanted to share my story with you. 11/23/2021 01:28:40 am
Why is weight loss so difficult? Most human beings could agree that weight reduction is a combination of weight-reduction plan and exercising, that is authentic Keto Strong Reviews but it isn't an entire fact. Losing the greater kilos looks as if an irritating enjoyment because of the starving weight loss program and strenuous exercising ordinary that it takes. That is why anyone presenting quicker weight loss, preferably with none effort, seems like a dream to obese people.
Faith Morgan
6/27/2012 02:02:21 pm
I can remember this! Lol. Number five was something i never thought about. I have tested negative for food allergies, but soy, for instance gives me diarrhea. Is this an absorption issue? 6/27/2012 10:48:56 pm
Selma: I am not sure what disorder you have. When the stomach pushes up around the esophagus that is usually a hiatal hernia, not a lipoma.
Faith Morgan
6/28/2012 03:07:58 am
Thank you, that finally makes sense. I am definitely "sensitive" to a lot of things...... have good weeks and bad days with the diet, but that is an improvement.
Britt Christensen
9/13/2012 06:39:44 pm
Karen, I have lipedema and the RAD diet is a new thing to me. Living in Denmark, Im on my own with this condition, even my doctor didnt know what lipedema was. 9/13/2012 11:28:04 pm
Hi Britt. Everyone is different and no diet can match everyone's genetics, lifestyle and environment. Yoghurt is alive and is one of the foods that I think is reasonable to eat on the RAD diet as it also supplies calcium, which is better absorbed from our food than from supplemental calcium pills. Raw cheese in moderation would be ok (two small cubes the size of dice daily). It has to say "Raw" on the label so this cheese is again alive. Milk if low fat supplies protein, calcium, and vitamin D so is ok, again in moderation, but milk activates the immune system. So many people (but not all) with RADs have elevated immune (inflammatory) responses to dairy. There are no studies telling us what will happen to your legs if you eat yoghurt daily and drink one glass of milk a night. The RAD diet has really helped a lot of people lose weight and feel better. You are the best judge of what works for you. The RAD diet is a guide. Happy and healthy eating!
Shawndrill Williams
10/9/2012 03:43:52 am
Karen,
Bob Allyn
11/6/2012 03:38:05 am
I clearly have Dercum's but my Heath Care provider (which is also the insurance company) refuses to diagnose it. Also, they don't refer to nutritionists without a diagnosis, so I can't talk with a nutritionist or dietician either.
Kathleen B
6/28/2018 07:08:29 pm
Ezekiel bread seems ok for me innsmall amounts 12/4/2012 03:18:56 pm
Site for AGE's: BlogBrendaWatson.com
Ann Glaister UK
2/11/2013 01:13:30 pm
Dear Dr Herbst
Jennifer
2/22/2013 12:44:19 am
I can not find a chart anywhere that has what to eat and what not to eat. 12/29/2015 07:18:39 am
This article gives the light in which we can observe the reality. this is very nice one and gives in depth information. thanks for this nice article.
Sheila
2/23/2013 10:51:33 am
I have Lipedema and I can't seem to find a physician here in the metropolitan area of DC to work with. I will go for my regular physical with my GP this week. How do you suggest I educate my doctor on helping me with treatment? Also, is it suggested to take before and after pictures of hips, thighs, and butt before getting any type of treatement done? I have a physical therapist that is willing to give me treatments 3 days a week for 45 mins. Should I go for 4 weeks or extend it to 6 weeks.
Jennifer
3/17/2013 02:16:30 pm
Tell your Dr to google lipoedema.
sheila gbade
3/21/2013 09:07:40 am
Thank you.
Katrina hawksford
3/17/2013 11:04:45 am
7/12/2018 09:03:48 pm
I was recently diagnosed with lipedema and have lots of questions and concerns.
christine
4/24/2013 12:31:00 pm
hello Karen...I have accumulated more and more lipomas throughout my body since my early twenties...I'm now 58 and I think I'm well up to 100, arms, legs, stomach, neck and for some reason many now on my back. They are not painful all the time, just when I roll on my hips, or poke at them, but for the most part they are just rubbery different shapes and sizes from pea to golf ball. I've had 4 removed and they haven't grown back. My doctor continues to tell me she is not concerned, just that some people get more than others and is willing to pop them out whenever I want to. I have next to none in my family. From my reading it seems I must have multiple lipomas not DD because most aren't painful...is that right? I did find one article suggesting hypnosis and was wondering if that was something you recommend. I'm not sure why that would work but I don't understand these things. I find myself so fixated on them and continue to see more and more. This is the first time I've seen anything on diet so I'm wondering what kind of research you have done with diet and multiple lipomas. I am willing to try anything to make these shrink....any suggestions? I've read that even if you loose weight they don't shrink. Is this true? I'm about 30 pounds overweight. It's so refreshing to find your website and know that someone is working on this as it does seem so common. Is there somewhere I can read more about them regarding your research findings? Thank you for any suggestions you can give.
KC
5/3/2013 01:06:02 am
Hi Dr. Herbst, for RAD dieters do you believe juicing to be a better option over smoothies made from blended fruits, vegetables, flax, and water/ice only? Or would doing both per day provide more relief and assist the body with toxin removal than only doing one or the other?
Barbara Aureli
6/3/2013 06:51:09 am
Dr. Herbst, How do I go about finding a doctor in/around Syracuse, NY? Do I look for an endocrinologist?
Jamie
6/21/2013 05:04:20 am
I have always tested allergic to dairy. I stayed away from it for ten years, but then started eating again when I tested allergic to everything and just thought it was pointless. Since I started eating it again I have had these painful lipomas and angiolipomas everywhere, and I feel so sick to my stomach and lightheaded. I stopped eating it again two days ago and I am starting to feel better. I still have the pain in the lipomas, but the nausea and lightheaded feeling are much better, and the eczema I always have on my hands is gone, as well as the pain and swelling in my hands. It is definitely worth it to get tested for allergies since it can cause inflammation. 6/27/2013 06:10:41 pm
The food you eat is the energy source that keeps you playing at a high level. In addition, a diet can provide vitamins, minerals and antioxidants that help a teen athlete recover from a hard workout. 9/4/2013 06:02:57 pm
Hence I started eating it encore I retain had these irksome lipomas moreover angiolipomas ubiquitous, plus I perceive so ailing to my appetite further lightheaded. I stopped eating it afresh couple times back moreover I am starting to sense superior. I nevertheless contain the ache in the lipomas, nevertheless the disgust further lightheaded attitude are many advance, furthermore the eczema I always bear on my employees is gone, as well as the agony besides lump in my workers.
Sheila Wise
7/15/2013 07:57:03 am
Hi Karen, I wanted to let you know that I tried to make an appointment with you and they told me they weren't taking any more appointments at UCSD as you were leaving. Only to get a call a couple of weeks later that I missed my appointment with you that previous Monday. I was so disappointed that I actually had one of your last appointments and didn't know it :( SUPER bummed. You are such a blessing to everyone and San Diego is going to miss you greatly. I wish you wonderful things in Tucson. I'm wondering though, is there anyone to follow up with here in SD? Thanks Karen! 7/15/2013 08:02:58 am
Hi Sheila: I have no recommendations for my replacement in San Diego. I designed my practice based on my research and no one else has taken up the band wagon.
Linda
7/28/2013 09:03:02 am
Hello dr Karen - I am a self diagnosed lipedema case - I have the classic lower legs and upper arms issue - my question is, is it lipedema if it never hurts? I read lipdma is considered a painful fat syndrome . 7/29/2013 04:19:13 am
Hi Linda: Lipedema fat does not always hurt. In some people wit lipedema that have non-painful fat, if I can find a small firmer bead of fat and gently compress it, there is pain. The greater the inflammation, the more the pain. The greater the fluid in the fat, the more inflammation, the greater the pain. 7/29/2013 04:19:36 am
Hi Linda: Lipedema fat does not always hurt. In some people wit lipedema that have non-painful fat, if I can find a small firmer bead of fat and gently compress it, there is pain. The greater the inflammation, the more the pain. The greater the fluid in the fat, the more inflammation, the greater the pain.
Brenda P.
7/29/2013 06:59:10 am
Dr. Herbst,
Linda
7/29/2013 06:59:19 pm
Thank you dr Karen .... Yes... I do have just one lump on my lower leg that hurts when squeezed or pressed on....
Brenda P
8/1/2013 03:43:10 am
Dr. Karen,
Michele Q.
12/16/2013 10:38:00 am
Hi Brenda. You mentioned something about raised veins on your scalp. Is this a symptom of lymphedema? Is it painful? I ask because I have lymphedema and I have been having pains on my head. I did not know if the pains were veins or if they were the nerves. Usually if I rub the lumps it relieves the pain a bit. 8/2/2013 02:43:17 am
Hi Brenda P.
Brenda P.
8/2/2013 03:31:56 am
Thank you Dr. Karen for the response. I look forward to getting an appointment with you.
Heidi
8/6/2013 04:37:37 pm
Dear Dr. Herbst,
Lark
8/10/2013 01:17:19 am
Dear Dr. Herbst, 8/10/2013 10:01:20 am
Hi Lark: I know of three people with scleroderma and Dercum's disease or Madelung's disease. I can see how one can have the fat disorder first then develop scleroderma or vice versa especially if the scleroderma causes fibrosis of the lymphatic endings causing lymph fluid to back up and the fat cells to grow in response. I hope that helps.
Lark
8/11/2013 12:46:23 am
Thank you. I will be buying several supplements/Cimetidine today to try to halt progression. For unknown reasons to me, rapid lipoma/swelling is currently developing; previously a far slower progression.
Linda S
8/29/2013 11:17:24 am
Dear Doctor,Herbst 10/7/2013 04:13:02 pm
There are so many different aspects when it comes to this topic. Thank you so much for sharing your knowledge on this particular aspect. 10/7/2013 04:13:29 pm
http://garcinia-cambogia-for-weightloss.weebly.com 10/7/2013 04:14:03 pm
zI truly loved reading your post. 10/7/2013 04:14:31 pm
I am preparing my assignment paper and gathering information on this topic. Your post is one of the better that I have read. Thank you for putting this information into one place. 10/8/2013 10:33:09 am
Excellent read, I just passed this onto a colleague who was doing a little study on that. And he basically decided to buy me lunch mainly because I discovered it for him .So let me rephrase that: Thanks a lot for lunch! My best regards. 10/27/2013 02:31:21 pm
Thanks for the unmatchable diary.it was rale useful for me.navigator sharing specified ideas in the instant as symptomless.this was actually what i was labour for,and i am voluntary to came here!
shawn waltenburg
10/29/2013 10:07:09 pm
Dr. Karen thank you for studying this and taking your time to help people with this. I'm almost positive I have this DD. From angiolipomas all over my lower back(which are the most painful) to arms and legs having some. I've got a def/pacemaker due to vtac. Seen some heart issues can be from DD if I'm not mistaken. Stiff and sore in a.m. Just wondering if DD let's us live as long as everyone else even with soreness and lipomas? Life span? Also on a raw juice fast right now. And eating clean after. What is the biggest help you have found with this disease? Like herb, supplement, diet? Thank you in advance. Anyone with this feel free to send me a Facebook request so we can talk BC I feel like I'm going crazy w doctors telling me nothings wrong. Thank you Shawn Waltenburg
Debbie
11/3/2013 01:53:13 am
Dear Dr. Herbst, 12/8/2013 02:27:59 pm
This is very nice one and gives indepth information. thanks for this nice article. 1/17/2014 06:21:19 am
Advantageously, the article is really the best on this notable topic. I harmonize with your conclusions and will thirstily look forward to your approaching updates 2/20/2014 05:23:07 am
I am very happy to be here because this is a very good site that provides lots of information about the topics covered in depth. Im glad to see that people are actually writing about this issue in such a smart way, showing us all different sides to it. Please keep it up. I cant wait to read whats next. 4/2/2014 05:18:11 pm
this is a very good site that provides lots of information about the topics covered in depth. Your article is most very absolutely nice.
nancy threlfall
4/4/2014 03:39:17 am
Dr. KAREN HERBST, YOU HAVE DIAGONIS MY SON WITH DERCUM'S DISEASE, I TO BELIEVE THAT I HAVE DD, I HAVE SUFFERED FOR OVER 20 YEARS. SEEN RHEUMATOLOGY doctor LAST MONTH AND HE SAID impression: multiple lipomatosos consistent with the dercums disease. Fibromyalgia sundrome,there is no clinical or lab findings to document any connective tissue disease. Multiple drug allergies as above documented. I have had lipomas removed biospy of adipose tissue (lipoma)
Ashley Miller
8/9/2017 09:15:30 pm
I really hope you get a notification of this comment. Your calcium is abnormally high and is probably causing some of your issues (blood pressure as one example) PLEASE look up PARAthyroid Disease. NOT the same as thyroid issues. 10.9 is TOO HIGH. You need your Parathyroid hormone checked also, they usually test this with calcium and vitamin D in a simple blood test. I had this disease also, it is curable. Many people with Parathyroid Disease have other health issues also. I really hope you see this... it does damage to your body over time. I went undiagnosed so long my right kidney started to dent in and calcify! Good luck!! 4/18/2014 07:18:14 pm
Your website is so cool. I am impressed by the info that you have on this site. It reveals how nicely you understand this subject. 4/20/2014 11:33:06 pm
It was worth visiting your blog and I have bookmarked your blog. Hope to visit again 4/21/2014 12:13:06 am
Ha ha, this website is too great, make me happy. Website decoration is very elegant, content is very full, continuously outstanding theme, let a person gutty want to continue down at feeling, and I am enjoying it. 4/25/2014 03:17:31 pm
Advantageously, the article is really the best on this notable topic. I harmonize with your conclusions and will thirstily look forward to your approaching updates 5/9/2014 04:06:54 am
This is a fantastic website and I can not recommend you guys enough. I really appreciate your post. It is very helpful for all the people on the web. 5/14/2014 08:16:28 pm
I am quite pleased with this site. There were some concepts by the author which were essential. I have stored your blog. Thanks for the useful period. Hi there! I simply wish to give an enormous thumbs up for the nice data you may have right here on this post. I will likely be coming again to your weblog for extra soon. 5/15/2014 08:37:53 pm
Oh! I can truly understand that disappointments and anxiety. It is not easy getting the blog in place again. \r\nGiven a little more time, I hope you can get things back again as it was. 5/18/2014 04:59:45 pm
Pretty good post. I just stumbled upon your blog and wanted to say that I have really enjoyed reading your blog posts. 5/20/2014 04:29:15 am
Hi my friend! I wish to say that this post is amazing, nice written and include approximately all important infos. 5/29/2014 07:48:59 pm
Thanks for give me information on this topic. you have sharing very nice post. 6/11/2014 07:22:35 pm
I have to say I am amazed by your article. Indeed coupons is very useful specially to online consumers. 6/13/2014 01:41:28 pm
Sometimes it is very hard to find good content on this topic. But your blog is my way to desired information, my problem is solved now. Thanks for posting something worth reading. 8/11/2014 04:29:04 pm
I need this article to complete my assignment in the college, and it has same topic with your article. Thanks, great share. 8/22/2014 02:13:48 am
Model turned his notice to your East this time. Figured out from in depth define of common Japanese inspiration, Karen Millen choosing foreseeable future parts, to show the image of modern women. Each and every Karen Millen Sale products or Japanese artwork of origami-style folds of ruffles, or from exaggerated metallic programs, or inspiration from your on the whole floral print, a singular attractive theme from. Satin kimono cloth and Karen Millen Outlet construction type attire and jackets, wide-sleeved shirt and double-breasted coat; exaggerated rosebuds prosperous black lace Mont Blanc Pens Sale UK overlaid on pale environmentally friendly, adds a powerful feminine in good shape for attractive skirts and trousers; temptation underwear the folds, dots and lightweight nude coloration to the boudoir glamor Chrome Hearts Online; beautifully etched floral oriental ornament for prom attire additional. 8/22/2014 02:14:34 am
http://www.catalinainfo.com/karenmillensale.html Karen Millen Sale
Rita Alaniz
9/10/2014 01:10:15 am
Thank you, It's been hard getting diagnosed with Dercum's Disease and not know anything as far as meds and food intake. This helps... I just found out I have DD this week 10/20/2014 07:40:06 pm
Thanks for sharing so significative article with us. I agree with your idea completely.I am looking forward to another great article from you. 10/26/2014 11:12:05 pm
I have visited this blog first time and i got a lot of informative data from here which is quiet helpful for me indeed.
FML Guy
10/29/2014 10:31:50 am
Question: This diet seems to be most beneficial for lowering inflammation for the more painful rad's such as Dercum's, but is this useful at all for people with Multiple Familial Lipomatosis? Technically FML is a rad, but do the same mechanisms that exacerbate tumors in DD apply to tumors in FML? It drives me CRAZY that i can't find any reliable information about the causes behind FML, even if the answer is: "WE DON'T KNOW" PLEASE HELP!
Nichole
4/5/2015 11:11:46 am
Do you know of any doctors in Minnesota who diagnose/treat patients with Lipedema? Thank you
Bob
5/1/2015 09:43:01 am
Suppose a person has Dercum's Disease and IGG subtype deficiency (subtypes 2 and 4 in my case). A person with IGG deficiency can get IGG replaced by IV Infusion or Subcutaneously. The subcutaneous route is by injections into the fat near the person's belly button (perhaps there's other ways, but that's what they're telling me).
Becky Johnston
5/16/2015 07:29:36 pm
Dr. Herbst, first I want to thank you for all your selfless work that is recognized around the world. About 3yrs ago I was diagnosed with DD here in Boise, Idaho. I was told it was quit the rare disease and even though it is, I am glad to find this platform and information. I am Bipolar, had a total hysterectomy at 23, gallbladder removed, I have Morphea, with a hx of internal adhesions, Fibromyalgia, and a handful of other ailments. My prescription list is long, and for pain I take Zanaflex, Mexilintine, and Dilauded. With these three I am still at times in pain. I have had 6 lipomas removed with 5 slowly growing back. They range from 1 in my L cheek, across my rib cage and stomach, my back, my thighs and my L sole. I do my best to walk my dog 2 times a day to stay in shape. Im 5'5 and 170lb. My heart isnt great either, something about my Left valve pumping offf beat. (oh, I had an ablation for WPW back in 1995). I guess Im just asking you or anyone who reads this where to get emotional support when at the end of a bad day (or the middle of one) and our families are busy, tied up with work, school, and house stuff; how in the world do we take another breath? I just feel like not everyone understands this pain. when the meds dont work that day, and I want to scream, but am afraid my dog will look at me like im crazy. Maybe just writing all this out helps. just knowing there ARE other people like me out there. b
Marylyn Black
5/18/2015 09:30:07 am
Hello Becky, I also have Dercums disease, have had to quit working, I was a waitress and a massage therapist. If you would like, you can get me on Facebook. I would love to be a part of your support group.
Tammy
11/20/2015 08:11:26 pm
Hi Becky, My mom is in Boise and I think she may have a fat disorder (tons of lipomas, docs say "normal"). Would you mind sharing the doc you found? Thank you very much. 6/4/2015 10:43:29 am
Dr Herbst, Thank you for not giving up on research for RAD patients. I was diagnosed approx 8 years ago by an old (age wise) rheumatologist in Florence, SC. 2 nodules (angiolipomas) were removed from my left leg & then he gave me a complete (most complete I ever had) physical including blood labs I never had heard of. My nodules all flare up at the same time that I get a new one. They have been slow growing & I have managed the pain with OTC NSAIDs, Celebrex, Tylenol, and Voltaren gel. I was a truckdriver & did not wish to add opiate pain pills, or I would have had to quit. Unrelated back issues (S-5, L-5) made me quit driving in 2011. I ruptured a disc (L-4, L-5) in Oct 2014. Since Oct 2014 I have been in a continuous flare. I received the series steroid shots in back in 2011 and again in 2015 with no effect on the inflammation, the sacroiliitis, lumbar radiculopathy, spinal stenosis, facet arthrosis, neural foraminal narrowing, or lumbar spondylosis. Last steroid shot in March. New MRI shows no reduction in the inflammation in the disc, the disc now bulging bilateral & constant pressure on nerve roots, worse on left than right. Was told that the inflammation has not abated. ( I could have told them that.) I have been told by one member of the pain management team that the inflammation from my back maybe "feeding" the inflammation of my angiolipomas or vice versa. I have not found a Dr here in my immediate area who can address the new symptoms of my Dercum's, although my PCP here in New Mexico reads all material I can find for her. I will be copying the white papers from your sites for her. They are treating the pain conservatively, with Norco, Gabapentin, Celebrex, and today they added Baclofen, & Amitriptyline. I also take lipitor for moderate high cholesterol, zyrtec for allergies, Wellbutrin, Iron, (last blood work up Oct showed anemia, Vitamin C, D3, and a multivitamin. Pain is a 6-7 on the meds, off it goes off scale. 12 hours without meds & I can not lift feet, weight bearing is extremely painful. I have to get the pain level down, I have to address the inflammation, because one way or another it is contributing to the pain in back & the angiolipomas. Pain Management has referred me to neurosurgical team. Back surgery options for me are limited because I am allergic to Nickel. I am going on the RAD Diet. I am hoping it will help with ALL the inflammation. I was told to double up on the Celebrex & to get some Prevacid to prevent ulceration. I use a tens on my back with little effect, ice, heat, and I was doing yoga (most unable to do now but some stretches still capable of) and I do focus meditation. Is there anything else that you can recommend to address the rampant inflammation I am now dealing with? I know you are now closer to me in AZ but I cant really travel that far right now. Hope to get appointment with you in the future. I am not asking for you to treat me over the phone or online, but do you have any other recommendation for inflammation in general that I am missing?
Khadija Loh
6/23/2015 05:20:08 am
Hello everyone! I was diagnosed with primary Lymphedema about 18 years ago at the age of 17. I am 120 lbs now , but I fit in the same pants I had when I was 20 pounds heavier. Although I haven’t been diagnosed with Lipedema yet, I’m pretty certain I have it. My legs are way too chubby compared to the rest of my body and they feel pretty tender on pressure. I’m scheduled to see Dr. H on July 10th, but something came up and I’m looking for someone to switch appointments with me. My appointment is July 10th at 1pm. Ideally, I'd like to switch with someone who's scheduled for September. Plz let me know! I've waited for over a year to see Dr. Herbst and it would be a torture to wait for another one! Thank you all for reading!
Dheere Dheere se Honey Singh
8/7/2015 03:33:59 am
https://goo.gl/AAtp62 Though Hrithik Roshan and Sonam Kapoor have never starred in a film together, they have featured in the commercial of a mobile phone and now, the duo is all set to scorch the screens with their sizzling chemistry.
Leslyn Keith
9/5/2015 07:14:21 pm
I notice that you recommend a low fat diet because the dietary fats are absorbed by the lymphatics. Has there been any evidence that people with adipose tissue disorders have dysfunctional abdominal lymphatics? I think you are conflating dietary fat and adipose tissue when making this recommendation. An interesting study would be to perform IC green imaging of abdominal lymphatics in individuals with lipedema, then have one group eat low carb high fat and another group eat the RAD diet, and then image the abdominal lymphatics again. Other outcome measures could be % body fat, weight, and limb volume.
Wendy
9/12/2015 09:37:26 am
The RAD diet says reduce animal fats because fats are absorbed directly into the lymphatic system. Should other fats such as dairy and olive oil be avoided for the same reason? Do we know that fat in the lymphatic for lipoedema sufferers is bad? We know saturated fat is not good for health generally but I'm struggling to understand the RAD diet and apply that understanding to all my intake. My lipoedema is getting worse in terms of pain and I am trying to lose weight and help the lipoedema inflammation but finding so many contradictory diet advice.
Connie
11/21/2015 07:57:47 am
I have a similar question about fats. In one of the research papers from Dr. Herbst it said that DD patients could possible benefit from fish oil. So, is it only some fats that are problematic to DD?
Connie
11/21/2015 08:02:07 am
I have been diagnosed with DD by Dr. Herbst about 3 years ago. I was hit by a car in June and have needed body work but often I flair up after. Has anyone found body work that is helpful and not flair them up? 12/7/2015 03:34:15 am
This post is so informative and makes a very nice image on the topic in my mind.
Anna Piperides Lee
1/27/2016 02:52:37 pm
I have Dercum's disease for over 28 years please send me the diet asap. I'm staring to get really depressed about my reduction in my mobility. Kind regards Anna 2/13/2016 11:26:34 am
level<a href="http://www.ar-kane.com/p/blog-page_4096.html ">شركة تسليك مجارى بالرياض</a> 2/15/2016 01:19:56 am
3/5/2016 09:42:12 pm
Thanks for give me information on this topic. you have sharing very nice post 3/10/2016 03:39:31 am
3/16/2016 11:59:38 pm
I would like to thank you for the efforts you have made in writing this article. I am hoping the same best work from you in the future as well 3/29/2016 01:54:54 am
In genuineness prosperous content and very helpful in seq 4/17/2016 05:40:08 am
The information you have posted is very useful. The sites you have referred was good. Thanks for sharing... 4/17/2016 06:29:42 am
This is the type of information I’ve long been trying to find. Thank you for writing this information. 4/18/2016 03:33:34 am
I see these days don't really provide anything that I'm interested in, but I'm most definitely interested in this one. Just thought that I would post and let you know 4/20/2016 12:35:05 am
Incredible data! I as of late went over your site and have been perusing along. I thought I would leave my first remark. I don't comprehend what to say aside from that I have. 4/26/2016 01:51:39 am
an de werknemer zou zijn gekomen. De collega is niet ontslagen en er is zelfs geen sanctie tegen hem ondernomen. Werknemer heeft daarnaast in zijn gehele dienstverband van 22 jaar maar één waarschuwing gehad 4/26/2016 03:20:22 am
I see these days don't really provide anything that I'm interested in, but I'm most definitely interested in this one. Just thought that I would post and let you know 4/28/2016 12:04:49 am
I have to search sites with relevant information on given topic and provide them to teacher our opinion and the article. organic supplements online 4/28/2016 01:16:29 am
Hi Linda: Lipedema fat does not always hurt. In some people wit lipedema that have non-painful fat, if I can find a small firmer bead of fat and gently compress it, there is pain. The greater the inflammation 4/28/2016 03:23:38 am
I’m glad I found this blog. Brilliant and wonderful job ! Your blog site has presented me most of the strategies . 4/28/2016 05:43:42 am
I have read a few of the articles on your website now, and I really like your style. Thanks a million and please keep up the effective work
Roland Garroz
4/28/2016 10:04:59 am
Good afternoom dear Dra. Herbst. I'm a clinical nutritionist and i'm interested in obtein some reference and information about the RAD diet, in order to incorporate this treatment to my patient. Actually i collaborate with the Valencian Asociation of Lymphedema and Lypedema Patient, and really apreciate some information about it, reviews or original researches if its posible. I'll be very grateful. My email Address is roland.garroz@gmail.com 4/30/2016 12:51:05 am
I think this is an informative post and it is very useful and knowledgeable. therefore, I would like to thank you for the efforts you have made in writing this article 4/30/2016 03:05:44 am
Very interesting blog. A lot of blogs I see these days don't really provide anything that I'm interested in, but I'm most definitely interested in this one. 5/1/2016 03:11:49 am
Wonderful site and I wanted to post a note to let you know, ""Good job""! I’m glad I found this blog. 5/2/2016 01:59:27 am
Absolutely, you were best suited dealing feel authentic at the covers only to find they land up in no way presenting nearly as good a good quality like they promise. 5/3/2016 04:52:52 am
i like your post and all you share with us is uptodate and quite informative, i would like to bookmark the page so i can come here again to read you, as you have done a wonderful job. 5/3/2016 05:55:26 am
re lorsque, à l’aube de l’âge adulte, il choisit de monter à Paris pour faire du théâtre. Il a passé son enfance à Lento, baignant dans les croyances et traditi
Sierra Nasir
5/6/2016 04:53:16 pm
Hey Karen, im 21 years old and last year i was told i have lipedema. Since then its taken a toll on me emotionally so i have been persistent in pursuing treatment. I live in Philadelphia Pa. Lipedema was a mystery prior to my diagnois. I was "diagnosed" by a doctor at an urgent care center and my primary care doctor. But they do not know what stage i am or if it has progressed to lipo-lymphedema. What doctor would be best to see for an official diagnois? What tests would i need done? 5/8/2016 08:53:15 am
Diuretics are usually not appropriate for lipedema. Any way you can see Steven Dean or Jon Bartholomew at the Cleveland Clinic.
Sierra
6/13/2016 08:25:56 pm
I cannot i live in Philadelphia Pennsylvania 5/10/2016 04:41:08 am
Really appreciate this wonderful post that you have provided for us.Great site and a great topic as well i really get amazed to read this 5/12/2016 03:14:33 am
I am very happy to see this valuable post. This post gives me something good information. I thumbs up your post 5/15/2016 05:00:47 am
Them aren't executed to the place nonetheless it’s striking. I'll give you actually the hyperlinks so you're able to look at them to do allow me to explain imagination 6/7/2016 03:18:13 am
Hi, I appreciate understanding the greater part of your post. I needed to compose a little remark to bolster you 6/10/2016 11:58:57 pm
Any apartment for sale in Istanbul is listed in our database.turkey real estate 6/18/2016 02:24:57 am
All the contents you mentioned in post is too good and can be very useful. I will keep it in mind, thanks for sharing the information keep updating, looking forward for more posts.T 6/27/2016 12:31:42 am
I am a self diagnosed lipedema case - I have the classic lower legs and upper arms issue - my question is, is it lipedema if it never hurts? I read lipdma is considered a painful fat syndrome . 7/3/2016 04:09:49 am
. Have you put the basics in place? Follow these five simple local SEO principles to begin to get the exposure your business needs. 7/27/2016 03:45:32 am
I can see that you are an expert at your field! I am launching a website soon,
You will find seven crucial things property professionals have to understand about how exactly to profit from the growth in luxury property sales. What works my shock you. <a href='http://backlinkswebshop.com/' title='trust flow backlinks builder' target='_blank'>trust flow backlinks builder</a> 8/23/2016 04:04:10 am
I hurt to pay heavily for England football travel packages no matter what the outcome of the game may be. This would require you to carefully analyze your competition timetable... 8/23/2016 06:21:24 am
Wonderful site and I wanted to post a note to let you know, ""Good job""! I’m glad I found this blog. Brilliant and wonderful job ! 8/27/2016 03:02:38 am
This post is so informative and makes a very nice image on the topic in my mind. 8/28/2016 03:11:22 am
This is really good information I have visited this blog to read something fresh and I really admire you efforts in doing so 9/1/2016 02:25:35 am
This post is so informative and makes a very nice image on the topic in my mind. 11/16/2016 01:12:30 am
That is truly decent to listen. much obliged to you for the upgrade and good fortunes. 11/21/2016 11:30:14 pm
Book Affordable Travel And Tour Operators In India At Lowest Cost With Imperial Voyages Tour Operators In India. 12/10/2016 03:59:39 am
Much obliged for the online journal stacked with such a variety of data. Ceasing by your site assisted me with getting what I was searching for. 1/6/2017 09:49:48 pm
A debt of gratitude is in order for this extraordinary post, i discover it exceptionally fascinating and extremely well thoroughly considered and set up together. I anticipate perusing your work later on. 1/31/2017 10:44:21 am
This is a savvy blog. I would not joke about this. You have such a great amount of learning about this issue, thus much enthusiasm. You additionally know how to make individuals rally behind it, clearly from the reactions. 4/12/2017 05:57:44 am
Your work is great and I value you and bouncing for some more educational posts. Much obliged to you for sharing incredible data to us. 5/1/2017 08:08:01 am
Amazing and extremely energizing site. Affection to watch. Continue Rocking. 5/22/2017 05:10:10 am
Wow, What a Great Site, All of the Health Related Posts Are So Informative for People With Review. I Liked It! I Also Have a Blog/site About That Covers Simple Herbal Related Stuff. Please Feel Free to Visit. Thanks for Sharing.
sany
6/16/2017 05:40:00 am
I was wondering if the RAD diet can accommodate a vegetarian diet restriction. Though I do have eggs I am a vegetarian otherwise.I also feel that milk does not work for me at all and so I have switched to Almond Milk. I feel however, that my protein choices are extremely low . I am 100% sure I have lipedema as I could never understand why my legs were the way they were ever since I was 10. I really wanted to embrace the RAD diet as that seems to be the only thing that would work for my condition but being a vegetarian not sure how I can accomplish that. Any advise you can provide will help 9/13/2017 01:23:09 pm
You diagnosed me over 10 years ago with DD. I am trying to cope but I would like to know if there is a more detailed version of the RAD diet. I am going to try it.
belitakin123
2/2/2018 09:29:40 pm
nice 3/31/2018 09:03:16 am
11/18/2018 07:24:07 am
I need to see you Dr. Herbst. Can you give me a valid number to call?
mary jane
3/23/2019 08:15:42 am
I want to share my experience on how I was
Thank you for giving posts and articles were very amazing. 7/22/2019 03:28:38 am
7/22/2019 03:29:08 am
http://emc-mee.com/blog.html شركات نقل العفش 7/22/2019 03:29:52 am
7/22/2019 03:30:45 am
http://treeads.net/ شركة سكاي لنقل العفش 7/22/2019 03:31:24 am
7/22/2019 03:32:19 am
http://mycanadafitness.com/ شركة كيان لنقل العفش 7/22/2019 03:35:10 am
Tyler Molenburg
9/27/2019 03:20:25 pm
Hi Karen - My name is Tyler and I am 28 years old. I have always played sports and stayed in really good shape and no prior to health to what I am about to mention. When I was 19 I took a workout supplement called Anavar (Oxydrolone) for about 3 years. During the cycle of this drug I began to notice a few Lipomas on my foreman. Over the last 9 years I have about 20-25 more lipomas appear on my Arms, Back, Butt and Thighs. Up until a month ago the cysts never cause any pain nor did any fat in my body. 1 month ago took a couple small doses of Creatine as I began to workout again. Almost instantly I began to have rapid heart and I saw inflammation in my arms and legs and began experiencing pain that resembles those with DD. Reading the stories of what’s to come with DD has taken a massive toll on me mentally and physically because the lack of sleep. I’m praying because this may not be genetic but rather self inflicted that there is something I can do to flush out what I have put in me. Or if there is something I did to my endocrine system that I can fix through treatment?
Elizabeth
4/30/2020 08:48:18 am
Hello Tyler, about a month ago I started taking a supplement for a stomach condition I had... after a month of taking it, I started to feel bumps develop in my lower back and then to my stomach... now I feel them in other areas of my body. I keep thinking that supplement I was taking caused it. With what you said about taking Anavar makes wonder if certain supplements can trigger DD symptoms.. How are you? Have your symptoms gone away?
Kathy Carlssen
12/5/2020 07:55:06 pm
Dear Dr. Herbst, 7/21/2021 10:14:48 am
Incredible posting, thank you very much for sharing this awesome content with us. Thanks for sharing. We came to know through this blog that Logistic Guru.Pvt.Ltd the Car transport Mumbai leading an effective way to transport your car from one place to another. It is cost-effective and highly efficient. Visit their website and get more information about it. Here is the link to the website, click on it. 9/13/2021 08:21:02 am
https://true-keto-1800-offers.jimdosite.com/ 10/8/2021 05:14:09 am
<b><a href="https://www.onegeneric.com/product/buy-benzoyl-peroxide-3-gel-online-persol-ac-gel">benzoyl peroxide 2.5</a></b> usually takes about 4 weeks to start working. It can take up to 2 to 4 months for the treatment to have its full effect. It has an antibacterial effect. It also has a mild drying effect that allows excess oil and dirt to be washed away. 11/2/2021 01:07:56 am
Official Website: -https://www.sfgate.com/market/article/Keto-Strong-Reviews-16569653.php Leave a Reply. |
AuthorKaren Herbst, a physician, educator and fat and lymphatic disease advocate Archives
July 2017
Categories |
RSS Feed