Karen L. Herbst, PhD, MD on video and radio concerning rare adipose disorders

Karen Louise Herbst, PhD, MD Living with Pain Radio Broadcast

http://www.blogtalkradio.com/yourmentalhealth/2008/07/11/dr-karen-l-herbst-phd-md-living-with-pain
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A video from Mindy Willert

http://www.viddler.com/explore/dakotamedical/videos/12/
Please share this video with everyone to bring awareness for Dercum's Disease.

THANK YOU FROM LADIES IN THE UK/ November 2012

I worked with Catherine Seo on a question and answer video based on lipedema questions submitted from ladies in the UK who just completed a lipedema conference. Catherine actually recorded and edited the session from our Skype sessions. Here is the thank you from some of the ladies and their suppport for the next Fat Disorders research Society Conference in the USA.

http://youtu.be/QfY9Y3w1EA4

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YOU CAN WATCH DR. HERBST'S MEDICINE GRAND ROUNDS TALK ON LIPEDEMA HERE:

https://streaming.biocom.arizona.edu/event/index.cfm?id=25173

October 2015
LA Music Awards Honors UA Physician, Researcher, Professor Karen HerbstDr. Karen HerbstKaren Herbst, MD, PhD, associate professor of medicine in the Division of Endocrinologyat the University of Arizona College of Medicine – Tucson, was recognized at the 25th Annual Los Angeles Music Awards for her compassionate care of people with adipose tissue disorders.

Dr. Herbst, a board-certified endocrinologist, walked the red carpet with her patient Brian Sirk who nominated her for the Producer’s Choice Humanitarian of the Year award. She was announced the winner for her “Medical Research of Rare Tissue Disorders” during a ceremony at the Whisky a Go-Go, a famous nightspot on West Hollywood’s Sunset Strip, in September.

Dr. Herbst is an expert in adipose tissue disorders, including lipedema, Dercum’s disease, angiolipomatosis and Madelung’s disease. She cares for people with these disorders who travel from all over the world to see her in her clinic at Banner – University Medical Center South in Tucson. Sirk suffered from Dercum’s disease for decades before being diagnosed with the illness and receiving treatment by Dr. Herbst.

“This award means so much to me as there were many years in the beginning of my career when no one seemed interested in adipose tissue disorders” said Dr. Herbst. “Things are changing now and awareness is growing which means that there is hope we can find a cure for the more common adipose tissue disorders including Dercum’s disease and lipedema.”

Adipose tissue is connective tissue consisting chiefly of fat cells but also a variety of other cells, including immune cells. It also produces hormones and recently has been recognized as an endocrine organ. Dercum’s disease is a rare condition 20 times more common in women and characterized by multiple, painful lipomas, or benign soft tissue tumors on the trunk and upper arms and legs that is chronic, long lasting and tends to be progressive. Lipedema is a rare, under-diagnosed chronic disease that that occurs mostly in women and is characterized by bilateral, symmetrical fatty tissue excess, in the hips and legs.

Thanks to recent private funding, Dr. Herbst plans to accelerate her research in adipose tissue disorders in the coming months.

This is what Dr. Herbst has to say about Dercum's disease in 2015:

https://www.youtube.com/watch?v=6yj4damFaFg

The physical exam for lipedema:

https://www.youtube.com/watch?v=G8jGrPdgZgo#action=share

Friday, November 13, 2015. The Danish Dercum Society was invited to a lunch meeting with two Danish Politicians to raise awareness of the rare diagnosis "Dercum’s disease" and Lipoedema and by that increase access to improved care and treatment that we know can help patients. This will allow more Dercum- and Lipoedema patients to get a better quality of life - and continue to work. Here is the video from our visit to Christiansborg:

https://www.youtube.com/watch?v=wLvkm8GMcB0

Dansk Dercum Forening
Published on Dec 11, 2015Dr. Herbst definerer sygdommen som værende et syndrom, som involverer flere specialer – fx endokrinologer, kardiologer, dermatologer, reumatologer, fysio- og lymfeterapeuter, ortopæd- og plastikkirurger m.fl. - alt efter den enkelte Dercum- /Lipødem ramtes behov.
Dercums sygdom (Morbus Dercum) er klassificeret af WHO (under ICD-10) med koden E88.2
Lipødem er klassificeret af WHO (under ICD-10) med koden R60.9
Både Dercums sygdom samt Lipødem er kroniske fedtvævssygdomme med smerter og med den konsekvens, at fedt vanskeligt kan tabes hverken via diæt eller træning. Men der er behandlingsmuligheder, som Dr. Herbst fortæller om i denne video.
Med besøget hos Sundhedsudvalget på Christiansborg, hvor denne video er optaget den 13. november 2015, håber Dansk Dercum Forening, at sætte gang i den politiske samt personalegruppers forståelse for Dercums sygdom (som hører under sjældne diagnoser) samt Lipødem.
Vi ønsker at skabe viden om disse diagnoser hos politikere og personaler fra social- og sundhedsvæsenet, sagsbehandlere i det offentlige system og fagbevægelsen samt lægekonsulenter, der sidder og skal træffe afgørelser i disse patientgruppers arbejdsmarkedsforhold og sociale sager. Uden behandling kan de ramte ende i en kørestol.

Dr. Karen Louise Herbst ph.d., talte også på Dansk Dercum Forenings konference på Rigshospitalet den 12. november 2015, se video her:http://www.youtube.com/watch?v=EL5nPX...

Dr. Herbst presented to Svenska Ödemförbundet on 26 June 2020

Title: Frankly Speaking (about lipedema)

I ett webinar med Dr. Karen Herbst presenterades ny vetenskap om biomarkörer som finns i lymfödem och i lipödem, men inte i fetma. Studien som genomfördes i år av bland andra prof. Stanley Rockson, Stanford University, är ett genombrott i forskningen om lipödem - och om lymfödem. Samtalet ”Frankly speaking” med dr Karen Herbst och SÖFs ordförande ägde rum den 28 juni 2020. Lisbeth Lindebrant koordinerade samtalet.

https://www.youtube.com/watch?v=-pSppWOwmyM&feature=youtu.be